Hi, I haven’t been on here for a while so apologies if anyone gets offended by this. I will say it like is for me.
I have both bladder and bowel problems, catheters for the bladder and peridteen for the bowel.
I have tried everything, suppositories, movicol and just about everything else and am now using peristeen. Is it common that after a bowel emptying using peristeen use you still have the sensation that there is something left in there that you can’y get out?
Overflow is also a problem, I try to empty my bowels normally and get small, thin, finger size bits out and then about an hour laterI have to get to the toilet quickly and the same again. I can’t go anywhere without the fear of having accidents. I use peristeen after and get large lumps out after the ‘overflow’ and as I feel that I am not empty I sit on the toilet for about an hour afterwards. Anyone have any ideas ?
I use catheters about 6 times a day and never drink after 9 in the evening but still wake up with the damp/wet feeling about 3 times a night. I use another catheter to drain the bladder, put on a new pair of pants and pajama bottoms. So in the morning there a 3 pair of pants and 3 pajama bottoms to wash.
Surely there must be a way to get help for this. My doctor has trid to get me on the Botox but the ‘money’ people say no. Maybe if the ‘money’ people had the same problem that would havemore sympathy.
Frustrated is a word, i’ve sone way past that word now.
Again I appologies for antything i’ve written that offends. Also my spelling could do with a refresher course.