I am having some issues with both bladder and bowel…so this may not be something you want to read.
It has been about 6 months since I started ISC and I am getting on ok even tho I still need to use a mirror but the thing is I have already moved up from size 10 to size 12 catheters as I was getting leakage around the cath.
It is still happening and I think worse even with the bigger size. Surely I cannot have overstretched my urethra in just a few months ? I know it is not a major problem but I feel messy and not clean with all this happening.
Added to that I started Peristeen a few weeks after ISC and find that it just does not sort out my problems totally. It is a huge improvement on what was happening before I got Peristeen but for a few hours after using the kit I still have leakage so still need to be well padded. I have tried “sitting” for longer, tried different times of the day etc … will it eventually settle down ? Or am I doing something wrong.
Again I am left feeling unclean.
I was told to use the Peristeen every day for 1 month then every other day and all would be sorted.
We do only have one loo and my son has serious Crohn,s and Ulcerative Colitis so I am always aware that he may be needing the loo so I am very aware that I might be trying to be too quick with the procedure.
Can anyone say how long they spend in the bathroom to complete a Peristeen procedure…sorry to ask and please only reply if you are comfortable to do so.
Thanks
Ell
hi ell
i also leak around the catheter, not always but a few times a week.
i dont use peristeen so can’t help you there
bump anyway
carole x
hi ell
anywhere between 1-3 hours
tho i dont use it now as too many issues to deal with and peristeen slipped down my priority list!
i did find it effective tho…
ellie x
OMG the Peristeen advisor who set me up with this said 15 minutes !
1-3 hours no way I could use the bathroom for that long, we obviously need another loo !!!
Ell
Hi, I cant recall it now, but I recently read about another system, like persiteen, only it is easier to use.
I`ll try to google a bit and see if I can find it for you and get back to you.
pollx
Hi Elljay, I struggled with peristeen - blooming balloon kept coming out. Different system called qufora - know nothing about it - sorry. But have seen a post about it but might have been on another MS site Good luck Min x
Many thanks for your repllies, Min I will try to finf info on the system you mention.
Poll thanks too for your help.
I really need something to do the job, but do it faster and do it properly.
The booklet and Peristeen advisor said after you get used to it, about a month it is just as east as cleaning your teeth.
Aparently the lady who is on the video that they use to talk about it says she now spends 15 minutes from start to finish then in the shower and ready for the day. Only using Peristeen every 2 days…I was so hopeful.
Back to the drawing board but will have to carry on with Peristeen in the meantime.
Anyone tried the Coloplast anal plugs…seriously…even tho it sounds like a joke.
Ell
I have been using the qufora mini for ajust over 2 weeks, even though the sound effects for about an hr afterwards can be embrassing. It is made such a difference I suffered for nearly 2 months with severe constipation and tried various methods to resolve without any luck. I do take docusate as well as it appears I need assistance from both ends. It took about 7 days to sort me out had some leakage during this time but that has now stopped. I use every day I am in the toilet anything from about 20 minutes to about an hour, depends on how much to come out ( sorry didn’t know how else to explain) This is one of the things as I can see the benefits from. Unlike some other things I take and don’t pKnow whether they do anything Barney
Hi and thanks to all for replies.
I researched qufora and found another system, Aquaflush as well but I cannot see either being better in my particular situ.
Since the reason I use Peristeen is that of uncontrolled leakage am told is due to the nerves not telling the muscles to hold anything, I guess they would all be the same.
I can never hold the water in even with the ballooon quite tight and I suppose that is why it does not do what it should and start the whole process of peristalsis which would gradually clear the bowel and giive me a day or even two of no “accidents”
Unless as someone else said I could be hung upside down I can,t see these processes working, am soooo disappointed.
Thanks again for your support
Ell xxx