After my post on Tuesday about dreading my neuro appointment, I had a moment of creativity and wrote a poem about the invisibility of MS. You might have seen it on Twitter perhaps, my handle is @186282c
Haven’t written a poem for over 30 years, and it’s pretty poor. But hey ho!
Hiding
As my ears are buzzing
And my face is zapping
And my left eye drains of colour
As my neck, bent, sends me tingling
As my chest is hugged by gripping
And my arms lose strength and power
As my guts stop moving
As my joints are stiff and aching
And my legs feel like they’re on fire
As the cold sends my body freezing
As the heat slows me to crawling
And fatigue makes treacle of the air
As my body always feels wanting
As my brain slows down my thinking
And my brain forgets to remember
As you see me standing
My MS is hiding
But for me it’s always there
Sarah xx