Hey sorry to come on here and grumble,
Feeling abit down in the dumps, and I should be delighted I have seen my MS nurse, getting my medicine for my fatigue. But still I feel this big dark cloud looming over and it wont subside. … its frustrating and im not usually a person to get down like to keep up beat but it seems more difficult these days then anticipated.
I only hope this is not going to be a long time feeling and that soon it will go in time … except the MS wont thats here for the journey to come. lol .
Sometimes its good to put words down that are often lurking in your head … even if it is in such a public domain as this. …
Well i mustnt grumble.
Hi LittleRay - sorry you’re having a difficult day…
Please don’t apologise for coming on here for a vent & a moan - it helps to share how you’re feeling & personally I think it’s great we all root for each other when the going’s tough. A stiff upper lip helps - yes - but sometimes it’s good to talk as they say!
I hope you feel better soon
Sending >>>>>> hugs & best wishes >>>
Love
C xx
Feeling for you. I understand where you are coming from. I started back to work today (part-time), after being diagnosed a few weeks ago and I’m zonked and just want to crawl into bed. This has to get better, I will not be beaten!!! But I will fight it tomorrow as right now I am feeling just like you. Tomorrow is a new day. My thinking is, when tired just rest when you can. Jenny x
Hi littleray,
I was diagnosed with PPMS 4 months ago, still have that dark cloud over me less often now, I still wake and the first thought is I have MS,where am I going in life,what am I not capable of today, etc… I call it my mind chatter, they do say you are likely to go through the grieving process and this takes time. I have read and read about MS I’ve read others stories &management strategies, medical stuff and the rest, I’ve used bits and pieces of others ideas etc. For me I find I can still do the things I enjoyed just in smaller doses now and not so independently and this is frustrating but we all need help from others and someone or somewhere to air our anger,frustration,queries, advice & laughter the forum has been invaluable to me for this. Don’t apologise for needing to air your thoughts. Tell yourself you can get through the darker days it does get a little easier to accept given time and be kind to yourself xxx
hi all,
thankyou for the kinds words of support my apologies for only coming back to you now. My settings doesnt seem to notify me when I have messages coming through. I am trying to think positive… i now have the medication and although im still having days where I feel exhausted as I am today and need to sleep im confident this symptom will improve over time.
It’s difficult to adapt at 26 years old to the fact that you have to decide weather to go shopping on one day or take your 2 year old son to the park, because you feel like a mum who is non existent and not doing enough with him, because ‘mummy feels tired’… I think this is the most difficult thing to come to terms with that and the fact that no two days are alike.
I have what is the ‘silent symptom’ and i look at myself and think im okay there is nothing there that shows it … but then the symptoms come on… mid way through the shopping aisle of Morrisons and i have to go and sit down because my legs just feel like they want to buckle at any given moment.
but i know i must remain positve im no where near as bad as some people who have MS therefore i am thankful that for me the fatigue and the muscle spasms in the legs seems to be the most common problem.
Again thankyou for listening to me .
hi all,
thankyou for the kinds words of support my apologies for only coming back to you now. My settings doesnt seem to notify me when I have messages coming through. I am trying to think positive… i now have the medication and although im still having days where I feel exhausted as I am today and need to sleep im confident this symptom will improve over time.
It’s difficult to adapt at 26 years old to the fact that you have to decide weather to go shopping on one day or take your 2 year old son to the park, because you feel like a mum who is non existent and not doing enough with him, because ‘mummy feels tired’… I think this is the most difficult thing to come to terms with that and the fact that no two days are alike.
I have what is the ‘silent symptom’ and i look at myself and think im okay there is nothing there that shows it … but then the symptoms come on… mid way through the shopping aisle of Morrisons and i have to go and sit down because my legs just feel like they want to buckle at any given moment.
but i know i must remain positve im no where near as bad as some people who have MS therefore i am thankful that for me the fatigue and the muscle spasms in the legs seems to be the most common problem.
Again thankyou for listening to me .