Hi all I’m new to all this forum thing but really don’t know where to turn. Feel like I’m losing my mind.
Will try to cut a long short short.
In April went to GP constant burning pain in my neck that just wouldn’t go away with full dosage of ibuprofen and paracetamol on a daily basis and also lost my balance a few times was extremely tired and noticed tingling in my leg hand, left side of my face. Blood tests done.
Was diagnosed with under active thyroid and low kidney function. Sent for ultra sound on neck and kidneys. Goiter was found. Treatment was started for under active thyroid but symptoms still ongoing. Kidneys looked ok. Had more blood tests and hashinmoto disease was diagnosed. Was sent for MRI head and neck. Arthritis was found in my neck. And lesions on the brain. After this was found symptoms got worse had 3 pain attacks (this was brought on by stress of it all) admitted to hospital after left leg weakness started too. Had LP CT scan and MRI spine and head. Seen neurologist (before all results were back) he put all my symptoms down and age (47) also found out on discharge I had vitamin D deficiency. Left hospital with vitamin D3 tablets and pregablin. That was end of October. No follow up or blood etc since. Till last week appointment with neurologist when I was diagnosed with fnd. Referred me to see the physiotherapist and phycologist. Feel like I’ve just been labelled with this diagnosis when the arthritis in the neck has not been treated/mentioned or the vitamin D deficiency. I’ve tried to get appointment with my GP but can’t get one till 30th December. Hope this all makes sense. And I know probably nobody will have an answer for me. Just don’t know what to think my head is all over the place.
That all sounds very difficult for you. Did the doctor suggest you look at Functional Neurological Disorder (FND) – A Patient's Guide to FND ? It’s the best resource I know of for what FND is (a real thing) and what it isn’t (somebody saying it’s all in your head).
A chat with the GP sounds like a good idea. In your shoes I would want to be sure I understood what the MRI report said and what those brain lesions were all about.
Thank you for your reply I’m trying to get an earlier appointment with the GP. Don’t think I wait till the end of the month but this morning had a letter from the neurologist and now completely confused. Type 4 oligoclonal bands (OCBs) are identical bands in both the cerebrospinal fluid (CSF) and serum, and indicate a systemic immune response. Not got a clue what this actually means. Trying to stay calm as I know stress is really triggering for symptoms.
I have no idea how the LP results work or what they mean, I’m afraid.
I have oglioclonal bands in my csf but not serum, usually identical bands are not indicative of ms but other conditions. I’m sure there are exceptions to the rule so don’t take my word as gospel 