Hi, Ive not visited for a while - been trying to just get on with things…
Brief recap main issues were buzzing face scalp feet legs and hands (both sides) - worse when im hot (bath) or after exercise & numb spots on face tip of nose tongue roof of mouth and lip. Weakness in left upper arm (now in both), urge incontinence (minor) and brain fog/confusion … no issues with B12
Had MRI (no contrast) nothing found - it said…I have lesions described as Intraosseous Hemangiomas in upper thoracic spine - but not thought to have any clinical relevance ie not MS, minor degenerative disc disease of L4/5 and established degenerative disc disease in the lumbosacral joint L5/S1 - nerves are not compressed. Discharged from neuro.
Had musculoskeletal assessment (February) who just referred me to a pain clinic -
Requested Vitamin D blood test from GP - Turns out I’m very low and have been put on supplements
Pain Clinic Wednesday (may) (we move quick up here!) Without any further tests (just one of them stupid mood questionaires) Dr. said I have functional neurological disorder - Im really confused - after reading a bit about it I still know nothing - they are looking to prescribe either gabapentin (sp?) or pregablin (sp?) for the buzzing after he looks at a recent paper on if it passes through breast milk (still feeding 10mth old).
Would they not have to do other tests to rule things out? like nerve conduction tests and i don’t know what else? as far as i know the dr. i saw on Wednesday was not a neurologist - should he be saying I have this fnd?? I cant find anything that links symptoms worsening in heat with fnd - has anybody else been diagnosed with this? Should I be asking for other stuff to be ruled out -
Really confused - thank you for taking time to read x Emma x