I was diagnosed with CFS in 2010 and I simply did not accept the diagnosis because I had to confirm the neurologist has got the correct diagnosis. I did not agree to the diagnosis and did not agree with it and was very clear about it to my GP.
Even though I refuted the diagnosis I recieved a letter in the post confirming I have been diagnosed with CFS/ME, it was a private appointment thats why I probably received the letter confirming diagnosis.
I saw the same neurologist again privately and he still was of the opinion it’s CFS and because I don’t agree with him he can’t help me. Upset at this I gave him some test results and he apologised for not having those and gave me a new diagnosis systemic inflammotory disease + fatigue + uveitis. I was upset with the attitude of the neurologist and told him that is it not one more word and walked out on him. I still have to pay him for that consultation
Why I disputed his CFS/Funtional disorder diagnosis is because I have abnormal VEP results, I have clinically diagnosed Optic Neuritis, RAPD when Optic Neuritis is active. I have abnormal NCS/EMG results. I have Internuclear Opthalmoplegia and Nystagmus. Inconclusive CSF results along with other various symptoms which are real and not made up.
I have had systemic inflammotory diseases and connective tissue disorders ruled out by the Rheumatologist. I am also still under the care of a Haematologist and they have not been able to identify any cause for my symptoms. “ms” mimics have also been ruled out. I have seen many speciaists over the years and the majority of them point to “ms” as the cause of my medical problems.
Just because no lesion or lesions showed up in my MRI scan does not mean that I am making the symptoms up.
I am going to carry on fighting till I get some answers, I had never heard or knew what “ms” is and was, until the Opthalmologists asked me to get my neurologist to consider “ms”
I am not saying I have “ms” but I will not take accept a diagnosis that points to me making symptoms up. I have very real symptoms and some abnormal results but no answers yet. The fight will continue from my end and I know there is a possibility that I may get no answers at all.
My last diagnosis by a neurologist was multiple neurological symptoms cause unknown.