Monster fatigue killing me at the moment… so it’s been a week since I went out (which I’m not complaining about as know others go out even less)… but had GP appointment so scooted down there and got prescription for the new drug neuro wants me to try (Topiramate).
As soon as doctor asked ‘How are you?’ I burst out crying! Oh dear! She offered me counselling but as I told her, I’m not usually depressed and think I’m just so blo*dy tired right now and because she said it in such a kind, sympathetic way. Do you know what I mean? It shocked me… came out of nowhere!
Anyway rode back through park which lifted my spririts no end. Lovely trees in blossom and that ‘after rain’ smell.
I know you guys will understand. It’s the relentless fatigue that’s doing me in. I go to loo and end up sitting there ages because I simply haven’t the energy to get up and go back to bed!
Ah Pat I know what you mean, you don’t feel like crying until some one offers a sympathetic ear. I hope you soon feel better and the dreaded fatigue lifts a bit. Once the weather improves I think it’ll help, it should lighten our mood. Take care.
Hi Pat Know what you mean about going to the loo wiping you out. I find it utterly exhausting. Sorry that you’re feeling so bad at the moment. I can only say, I hope you feel a lot better soon. I burst into tears on my GP not long ago and it came out of nowhere too, funny that. Anyway, keep keeping on, don’t let it grind you down! Teresa xx
Thanks Lynne and Teresa. Another day of waking up exhausted… but my sister coming over today and will be so nice to have some company.
Starting new med’s tonight. Hope they give bit of relief but if not I’m going back on Amitriptyline. I know they don’t help with the fatigue but if other symptoms are helped it makes a difference.
Glad that you had some tlc from your sister Pat. Hope it helped. Lunch sounds fab and chocs and flowers too! Hope you’re feeling a little less fatigued. Teresa xx
Hi Pat l do hope you are feeling betterit is nice to get out and about l hope you and your sister had a good chat l do not see see my sister a lot but my brother lives 7 doors away and l see him every day as l dog sit while he is at work. l went to a patchwork display at a museum near home l went on my new boot scooter ( its brill ) only to find it was upstairs they did have a chair lift so l did get up l can not do as mush patchwork as l used toobut l do try. Just think summer is comeing and we are all here to chat to you
Thanks Jan, I am actually feeling a bit better today. I took 25g of Topiramate last night (latest drug neuro has prescribed). Felt a bit strange as I went off to sleep… very ‘drugged’… but definitely better today. Less pain, less buzzing, body seems to move easier, and bit more energy. My tinnitus is louder though which is always a problem with me and drugs.
Went with friend for walk down the street!!! (well, it’s a short side-street but all the same…). Was lovely to be out.
Patchwork display sounds interesting. I love patchwork. I once heard that in 19th century American women would save a ‘patch’ from all the dresses their daughters wore from babyhood throughout their girlhood, and would then make them into a wedding quilt when the daughter married. Lovely tradition.
Difficult when you can’t do as much as you used to. I like to do tapastry but now my fingers aren’t so nimble and my eyes aren’t so good. Oh well. We do what we can.