I’m new to this forum so will start by introducing myself. I have rrms, first two relapses were in 1999 (transverse myelitis) and 2001 (optic neuritis) and I was then really mild with no relapses for 10 years. Lulled myself into quite a false sense of security over that time and I don’t honestly think I thought it would ever get much worse.
Then I changed career and started teaching, which does not turn out to have been my greatest idea as I find it really stressful and it has started triggering relapses - one was 18 months ago (which was mainly numbness so I ignored it for months as I didn’t want to admit relapsing after so long being fine), and then another more severe one in February this year. In February I lost the use of my right arm and some use of my right leg, and had dreadful pain in my head around the ear and jawline. That lasted about three weeks, had to have time off work, fatigue was bad for longer but last couple of weeks had been back to normal more-or-less. I have since started Rebif injections.
All was starting to go fine again, have asked at work to reduce hours from full time to two days a week, but realisically it will be September when that gets arranged (and financially that would be better anyway) and I have been able to manage full time (just) since just before Easter.
And then Ofsted phoned last Wednesday. Stress levels went through the roof and by Friday my legs were significantly weakened and fatigue getting worse.
Today I only managed half day, am numb to the waist and haven’t the strength to walk much, which is not really ideal in my job.
I am just so fed up as I was doing lots better after the last relapse, and now I feel I’ve just gone backwards again.
And today is my birthday and here I am, sent home and currently in bed feeling grumpy!