I’ve been lurking in the background for just over a week getting myself comfortable with the idea of posting; I’ve never been one to participate online or seek outside support. While I’ve experienced changes in symptoms over the years, on 14 July I had my first actual relapse since my diagnosis in 2011. I’ve lost my sense of taste and struggle to express myself and find words (I called the ladder "the thing that makes it so I can reach up high).
I visited my doctor yesterday and am scheduled for an MRI tomorrow morning. Because we don’t know if the lesion is still active, I’ve not been given steroids. In fact, I’ve never had them. We also discussed changing treatment - I’m currently on Copaxone.
All of this knocked me back further than I expected, and while I know that I’m not alone in this, I’ve only ever talked about living with MS with my medical team, family and close friends. I feel like it’s time I change that.