Hi all. First time post. I was diagnosed with RRMS eleven years ago (aged 35) and have done pretty well over that time. A few noticeable relapses mainly affecting legs and one impacting speech in 2018. The general pattern was that I recovered pretty quickly. I could feel my legs getting a bit weaker over the years but was still out running 5k on a regular basis (despite being overweight) so didn’t think too much about it. The last 3 months have been a different story. It feels like I’ve had 3+ consecutive relapses since March, and never really recovered from each one in between. Mid March was mainly weak legs, enough to stop me walking the dog for a bit, and a mild case of ms hug.
Then late April, just as things seemed to be picking up following the March relapse I had a bigger one. Very weak legs, lots of altered sensation on legs and abdomen. A couple of weeks later, again as my legs were improving I went downhill again. Leg weakness again and lots of altered sensation, but also issues with left arm and hand (spasticity, weakness and numbness).
Those symptoms were improving gradually before a few days ago my legs got much worse. I’m on holiday at the moment and I’ve had to quickly buy a walking stick to help me get about as my left leg is the worst it has been.
I saw neurologist a few weeks ago, who was upbeat. Saying I’m only on copaxone so we have options for stronger meds pending the result of MRI scan in a few weeks. I was doing ok ish when I saw neuro, I’m significantly worse now.
Mental health has taken a real hit over recent months. I’m really struggling to stay positive, and constantly fearing the worst (having to give up work, sell house etc). With all of this MS activity happening in a short spell it’s really difficult for me to think this is a relapse and things will improve.
Any words of wisdom from others gratefully received.