Had symptoms since a teen relapsing remitting now I’m 35 . I feel it’s now progessing to secondary . I finding it hard to accept I’m losing parts of myself and I don’t feel as capable as before .
Also I’m pretty much at home 99% of the time with the fatigue pain balance . It also has made me feel quite unsure of myself .
I know I need to accept this but I’m finding very difficult to accept the things I have lost and losing out on things . I worry about the progression .
I have a young daughter age 2 I worry that I won’t be able to take her school etc.
Anyone else been through this pattern of thought and anyways to deal with it ?