After leaving hospital last November, I have finally seen a doctor about radiotherapy.

As I expressed my frustration at the delay, he went all defensive. “We’re at the end of the food chain,” he claimed. We received the referral on January the 28th. That’s still a month but as he was now cowering in a virtual nuclear bunker, I declined to pursue any queries regarding the snail’s pace of the NHS. So that’s an initial session within 2 weeks and a 5-week course of therapy with chemo medication within 4 weeks. I was assured that I wasn’t going to lose my hair. But the daily routine will involve a 52-mile round trip so I’ll become friends with even more patient transport drivers. They are a jolly lot!

Now it’s just a case of preparing for the extra exhaustion. Time to step away from the kitchen and forage in the freezer. Even after yesterday, I’m having a DEAD day.

Good wishes.

It’s worrying Steve , they don’t seem to have any answers . The NHS is in crisis. i hope you get the support you need its not easy coping with ms without having extra problems. Michelle and Frazer xx

Aw Steve. I’m sorry you’re having to go through all this. With my cancer diagnosis and radiotherapy last year and the four hour round trip it entailed, I did ask myself what had I done to deserve it? The five weeks of daily treatment was exhausting. It passed though. You’ll get through it Steve, because you have to. I wish you the very best. Take as many dead days as you feel you need to. Now more than ever, love yourself and be kind to yourself. X

Hi Steve I am sorry you have to go through all this, as if Ms ain’t bad enough. Will be thinking of you and wishing you all the very best. Above everything take care and be kind to yourself. Pam x


I don’t come on this forum very often any more - I’m so sorry to read about your news, and I too wish you all the very best, and hope you get through this with as little trouble as possible from now on.

Hi to everyone else, hope you’re all doing well.

Jo x