I had my 1st appointment with my MS nurse last week and finally i feel ive met someone that understands , ive had 14yrs of its Parkinsons or Dystonia or both and when my nurse saw me she said straight away she could see i had MS , ive posted here before quite a while ago now , now i have finally had the chance to talk to someone who knows and understands i feel elated , i dont know this could be the calm before the storm but ive also been diagnosed as PTSD from my lifeboat days so it feels like everything is clicking into place now , to be honest i feel exhausted fighting this mentally & phsyically , she has refered me to a Pain Clinic and for Physiotherapy and also is going to change the meds my Drs and so called Consultant put me on as they said this was an MS med and my nurse found out it is infact a Parkinson med , after all these years i dont feel i can trust my consultant anymore and will be changing him , these nurses do a wonderful job and the world should know they do.
Im planning on visiting my local Merlin Centre and having a look around as soon as thee wet weather goes , i feel i got it easy compared to some as im still on 2 wheels (biker) and when the time comes and if it comes then i will add a 3rd wheel but my heart goes out to all siufferers , im from a bloke bloke enviroment and find it hard to say i cant handle this but im glad i did as it seems as if there is light at the end of the 14yr tunnel at last
