Finally got a diagnosis late this week and both neurologists agree with each other that it’s FND.
I’d just like to say thanks to all that replied to my posts and to all those who have written down their experiences.
Now that the reality of actually having a diagnosis is setting in, I feel like it’s going to take a while to get my head around it.
Still not sure how I feel about it as whilst there was no real diagnosis,it was if the whole thing wasn’t really happening and i was able to think that it might just all go away.
Still slightly disturbed by being told that FND mimics MS but the only difference is there’s no noticeable damage to the nerves ( that was how it was explained to me anyway) - I’m still concerned that something has been missed and won’t be noticed until a lot further down the line.
But, all MRI scans came back without too much to be seen (nothing out of the ordinary apparently), the nerve conduction study returned clear aside from slight carpal tunnel in both wrists and the lumbar puncture has apparently come back negative on all tests ( haven’t had written confirmation of that, but I’m sure it’ll come).
So, I’ll take the diagnosis and run….well, hobble / Zimmer frame it off into the distance.
Thanks again for the support and now I’m off into the murky world of FND to try and find the treatment I’ve been told I should be getting.
Good to hear that you should be getting some treatment! I presume physiotherapy and cbt, and maybe biofeedback? Fingers crossed that you get improvement of your symptoms in time. All the best.
Thank you for letting us know. I can imagine that your dx feels unsatisfying in many ways, but there’s one massive advantage that FND has over MS: it can get better. Maybe slowly, maybe not fully, but better. I hope that over time you will heal and recover your health and strength and get on with living your best life. Good luck with it all.
Thanks for filling us in Six String. In many ways FND is a more positive diagnosis than MS, much as Alison said. There is the possibility of improvement with FND. It may take work, exercise and be a hard slog, but ultimately be worth it.
You should find that the resources you already have about FND are sufficient to help with symptoms and tactics for dealing with them. But, as already noted, MS has a lot in common with FND, so you may find that this website and the MS Trust also have pages useful to you.
