Hello,
I haven’t posted for on here for a while but at the moment I’m just feeling very low, emotional and alone with my ms. I’m not sure what to do or where to start, but I think I need to be in more contact and connect with others who can relate to my situation. Living alone with ms is so hard and because I rarely feel up for doing the things I used to do to socialise, I feel like I’ve drifted apart from everyone. I need to feel less alone because that feeling is crushing me 
Are you working?
I’ve been out of work for two years because of my fatigue, pain and how badly the stress of my last job was affecting my ms and mental health. I miss working though.
I’ve given up now too, because of the fatigue and mobility/pain got too much in the end but have managed a few temporary jobs in the past couple of years. Keep looking until it’s time to stop!
If I could find a job that meant I could work when I liked (or when I was able, more to the point), predominantly from home, then I’d still work now. Brain still works… There are good days and bad: sometimes it can take the best part of an hour to get pants & socks on due to the bending & spasms and slowly working my way down to my ankles.
In a way, it’s easy not to think about how life used to be or how it should be if I didn’t have the disease, because all my effort goes on getting out of the chair, or bed, or to the kitchen or the bathroom. Different priorities! My new job!
Hi Jacob
Really sorry you are having such a hard time.
Have you looked for any local MS groups ? I haven’t joined any but I believe some meet up on a regular basis for chats etc , meals and in some cases trips. My local one ( some 8 miles away ) meets weekly in a pub for a meal, drink etc and chats- socialising and I’m guessing that they keep in touch between the weekly meet ups
Hi Jacob, hank-Dogs has a good point, my local ms group is great.We meet once a month for meeting, then once a month for social activities. There are people there that are worse than me and I find myself thinking…if they can do it, so can I…its great for confidence building, which it sounds like you could do with, but its with people who understand.
Take care…we are always here x
I’m sorry to hear things are so difficult for you. I definitely want to find something. I’m thinking of looking at some volunteer opportunities to see what kind of things I can manage and be around people a bit more.
Hi Jacob,
I was going to suggest some sort of voluntary thing when I saw your first post. It might depend a bit what’s on around where you live, you might need to try a few things out, but I’ve found this sort of thing helped me meet more people (I also live on my own). You need some sense of purpose in your life. It’s so easy to kind of “turn in on yourself” if you’re on your own all the time.