Im so fed up of people not understanding or pretending they do when they dont. I feel like im fighting a constant battle everyday with myself and with the people i love ive never been so lonely amd miserable.
my husband once had toothache but pronounced it to be neuralgia!
then one day he asked what i was moaning for.
i let rip - iâm not moaning, iâm groaning in pain.
then reminded him of how much pain he was in with his âneuralgiaâ and said âhow would you like to carry your body weight on your faceâ.
my rant lasted a good half hour.
he went quiet then said that he had no idea i was in so much pain (huh - like i never said anything).
anyway i didnât hit him with a brick at least!!
that is why this forum is so important.
you can let rip on here, you are among friends here.
hope your family see sense soon.
Youâre never so lonely as when youâre amongst people who donât understand you and your pain.
This forum helps lots of us to feel less lonely. Weâre among friends here.
Sue
I think that it is nigh on impossible for other people to âreallyâ know or understand. Unless you give them a blow by blow minute by minute analysis they canât possibly know how we are feeling and letâs face it that would be pretty grim for all parties! For me (and it is an ongoing battle-not something that I have mastered) it is about me acknowledging that they canât know or understand (especially if I havenât told them!) I know that because I look ok and generally say that I am ok they will think âshock horrorâ that I am ok! I try to see the positive in that I âlook okâ means that firstly I havenât yet become obviously physically disabled and because of that people donât treat me like I am! I know that I cannot truly understand conditions that I have never experienced; I can try and imagine but I canât really know. All I can do is be empathetic and wait for cues as how to help. I imagine that is how it is for our loved ones. I also imagine that because they âdonât knowâ they are even more or at least as scared and alone as we are sometimes⌠still frustrating though!