So I’m having a bit of a moment the past few days.
I was diagnosed a couple of weeks ago and am still coming to terms with it all. I had a brief bout of optic neuritis last year but no other symptoms so I’m struggling to comprehend that there is a significant chance that I will have mobility issues in the future. I am an extremely active person at the moment and the thought of my body restricting me is killing me.
The worst part is that I don’t know what my journey will be - everything is quite vague online as everyone experiences different symptoms. Is there not a general progression that most people will follow e.g. unable to walk 100m in approx 5 years, will need use of stick within 20yrs? All my friends/family will tell me there is no point thinking about it but I want to plan and make the most of my body whilst its in good working order whilst I can.
What are other peoples experiences been like?
I’ve read on wiki (I know! I know!) that people who’s first symptoms are sensory often experience mild attacks within the first few years - does anyone know if this is accurate?
I haven’t been given an appt yet for the MS nurse or an MS specialist (the neurologist who diagnosed me, although was a lovely man, couldn’t answer any of my questions!) so i expect they will be able to answer these questions but any help in the mean time would be great!