Hello everyone I hope to find you all well as can be and happy. Feels like spring is here doesnt it. Lovely blue sky and crisp air…
Well here is the glum prob:
I have had three MRIs upto date and they are pretty much as they were the first time. 2 white matter legions on my left temporal lobe. And a bit of something or other on my c-spine (i cannot for the life of me remember what though) but cant have been of much significance.
Any way, for a few weeks now I have been getting slower again…I am slow anyway… and my legs feel like tree trunks. I was having a real nasty cramp in my left foot so went to ask my daughter if she would massage it for me…as i was walking through to the living room my right leg would not come up of the floor…it just stopped dead without any warning. I was willing it to move but i couldnt even feel it let alone make it move.
After a struggle my daughter managed to get me to sit down on a kitchen type chair but my right leg was sticking out and still refused to budge. It was like this for about ten minutes and then slowly began to come back to life.
I have been getting a lot of pain in my arms and legs, tolerable, but getting worse and although i am still managing to go to work i am finding it increasingly difficult. I also have to plan most of what i do with great care otherwise i come to a full stop and feel exausted. fatigue seems to be getting the better of me again as well at the moment.
Just what do you do when all seems well to the clinicians…and you are left on their books but with no planned appointments, and told you only need to see them if something goes wrong. Just what and how much has to go wrong and what sort of something if it is not any of the above unless things show up on tests etc:?? And have they kept me on their books for good reason? just in case/ do they do that?
I have been wondering if this symptom increase has anything to do with the steroid treatement i had two years last November having lost any effect it may have had? I hope that doesnt sound like a daft thing to say? Or such meds only keep or help for so long before symptoms start up again…
So many questions…
Anyway…thats why im feeling a bit in the dumps…I am comming to the point of “am I imagining it all”…
But I know im not, i have much better things to do that send myself potty and but for being on a megga go slow with my movements I would be planning great escapes and activities…however…it does all get to you a bit and frustrates the hell out of you doesnt it…
Well, thanks for listening and I would be grateful for any ideas or comments…even if it is to say hello.
Take care and hope to see you soon xx Maria.