Hey everyone,
I posted a few months ago about my ongoing battle with neurological symptoms and my somewhat unsympathetic neurologist. I wanted to give a quick update about what is going on, and ask if anyone has any advice about where to go from here.
I had a second MRI last month (first one was in 2014) after a third bout of sensory and mobility problems. The first scan in 2014 came back clear, but I found out last week that they found a number of lesions on my brain this time round. I don’t really know much about lesions but I do know that they can be indicative of a number of things, not just MS. Has anyone else had a similar situation of having a clear initial scan and then another not clear one- and does it always end up to be MS? My neurologist said we’ll discuss it at clinic but I haven’t heard anything about an appointment yet. I assume they will want to do a lumbar puncture.
I’m feeling a bit isolated at the moment, like I’m carrying around a big secret. I’m a grad student so I spend a lot of time surrounded by young healthy people and when they ask me how I am I either have to lie and say I’m fine, or watch the look of horror on their face when you tell them what is happening. I think I am dealing with the news pretty well but it is difficult not having an outlet 
I’m also not sure how open to be about it with my thesis supervisor because I still don’t have a diagnosis!
Sorry for the long ramble- I hope everyone is getting a chance to enjoy the sunshine today!
Georgie