I’m cheekily popping in here again to ask if anyone who now has a confirmed MS diagnosis had a clear or ‘within normal limits’ first MRI? Does it happen often?
Recently, I spoke with a couple of MS Society fundraisers that I met at a local supermarket. As I was using my wheelchair at the time, they asked if I had MS and I explained that my diagnosis is currently FND as my MRI was ‘within normal limit’ but that I am under further investigation (awaiting second neurology referral because of increased existing symptom and appearance of new ones). One lady said that her first MRI had been clear.
FND is supposed to be diagnosed with positive signs but I re-read the neuro’s letter and saw no mention of any positive diagnostic sign, just my negative results and my own ‘subjective numbness/tingling’.
I’m not sure how to approach the second Neurologist. I’ve not had EP nor and LP (not that I really want it!) and my MRI was only on a T1.5 and I know that hospital has a more powerful T3, so there are more tests that could be done. Do I brazenly ask for them?
I’ve been living with MS-like symptoms for at least two years now, with fatigue stretching back possibly eight years and an episode of diplopia and uterus failure five years ago. If the second neurologist does more tests and stands by the FND diagnosis, then I’ll have to accept that (it’s a nerve malfunction that may improve, or not. It is much less researched that MS and has fewer treatment options). If it does turn out to be MS, as I strongly suspect, then I know I’ll be supported and I’m already fairly informed about it, so I’m not scared anymore. I just need some clarity.