Hello All, sorry if this starts to ramble but it’s my first time on here. I feel like I’ve been on a long journey and just need some support really.
First history, I’m a 46 year old Mum of four and work full time, in a fairly demanding job (I support children with complex medical needs) . About 19 months ago i collapsed at work with terrible pain in my head/neck , like a really bad migraine but everytime i tried to stand up I feel over and vomited. My colleagues phoned an ambulance and they rushed me in to hospital and performed a CT scan which was clear, they also ran blood tests, which showed I was anaemic , but that was no suprise as I always am! over the next couple of hours I felt better but was left very shaky. Now as I said I have four kids so i signed myself out and went home, saw my GP got some more iron and she signed me off for a week . Since then I have really felt rough , very fatigued and then about twelve weeks ago my symptoms started to get much worse, very shaky. falling over, bumping into doorframes,forgetting words and blank moments , co-ordination all over the place and tremors and weakness, particularly on my right side- to the point that colleagues at work began asking me if i’d had a drink at lunchtime (not as funny as it seems) . I saw my GP and she sent me for more blood tests and found my B12 was low so started on the injections but the nurse I saw was very concerned that my tremors etc weren’t improving and my right side is still very weak - particularly when I’m tired/stressed. My GP then saw me again and put in a referral to neurology, and I have an appointment next week. My symptoms have got slightly better , but I still have pins and needles in mainly my legs, numb feet and in bed I can’t always judge where my legs are (? weird) , very poor co-ordination and a horrible tightening pain that keeps creeping up on me round my ribs. I also find that I forget words and names and lose my place mid conversation.
Does any of this make sense? , feel so tired easily and just seem to be in a really confusing place at the moment, what can I expect from my first visit to the neurologist?- I’m hopeful because its a speciality unit with MS specialists and Nurses.
Sorry like I said bit rambling but sick of feeling out of control , any advice would be great , thanks xxx