I just had to come here to see if anyone else who cares for their loved one with MS is feeling like they are slowly losing them to the illness.
My husband was diagnosed in 2003 with Primary progressive MS. He is more or less bedbound and his cognitive issues have increased. By that I mean he gets very confused and can mixup reality with what he is watching on the TV. His memory is not good and if you didnt know he had MS you would think he has dementia but it is the lesions.
I used to be able to phone him or him me while I am at work but I am noticing things are getting harder for him to communicate.
He has tremors which means he has to be fed but he can still hold his sports bottle for a drink.
He has The possum system fitted next to his bed which makes turning on the TV so much easier. He has now been registered partially sighted and this is another thing taken away from him.
I just feel very sad when I think of the man I met and married and now 36 years together this is taking him away from me.