Fatigue Confusion

[jactac]

I’m just wondering if MS fatigue is of one type or more ?

For instance, I dont get tired or need to sleep, but my legs get what the MS call muscle fatigue, they go from being slightly stiff and heavy to completely having to drag them and not being able to lift them at all, but they only get to this point after either walking too far or not taking breaks in between walking.

But even when they are at their worse I dont feel the need to sleep, sit down and rest my legs yes, but sleepy or tired no.

My MS nurse tells me that some people with MS might not have so much difficulty with there mobility but find that they just have to take a nap every few hours because of their fatigue ?

So I was just wondering if what we call MS fatigue can vary so much and affect us so differently ?

My cousin takes Amitriptyline, and swears that she couldnt get through the day without it, but her mobility is far far better than mine, yet she gets very tired easily, as in sleepy.

[Crazy_Chick]

@jactac

I’m just wondering if MS fatigue is of one type or more ?

For instance, I dont get tired or need to sleep, but my legs get what the MS call muscle fatigue, they go from being slightly stiff and heavy to completely having to drag them and not being able to lift them at all, but they only get to this point after either walking too far or not taking breaks in between walking.

But even when they are at their worse I dont feel the need to sleep, sit down and rest my legs yes, but sleepy or tired no.

My MS nurse tells me that some people with MS might not have so much difficulty with there mobility but find that they just have to take a nap every few hours because of their fatigue ?

So I was just wondering if what we call MS fatigue can vary so much and affect us so differently ?

My cousin takes Amitriptyline, and swears that she couldnt get through the day without it, but her mobility is far far better than mine, yet she gets very tired easily, as in sleepy.

Hi i never feel sleepy. I sleep ok in the night well fitfully, i wake up a lot but i can generally get a few good hours sleep.

I liken my fatigue to a battery. I start off fully charged so i do all my chores my MS allows me, then from usually 10/11 am i am resting on my recliner for most of the day, as my body feels really heavy and its hard work to get up or go for pee. like i am walking through concrete. i never sleep in the day and i think that is why i sleep better at night.

some MS drugs are designed to make you feel like a zombie, i tried amitriptyline, and boy i could barely get up.

anyway by 4pm my battery is fully drained and by 5pm i am in bed. I am bodily fatigued, totally like i have run a marathon. even going to a pee is an effort.

[reddivine]

If I don’t sleep by 2pm, i start getting brain fog, and eventually won’t string a sentence together. Learnt the hard way - go and lie down!!

The legs thing? Gradually got worse, strength and stamina getting worse, being less and less able and trying was a ticket to disaster. So learn your limits. Is it worth being in agony for a few days after walking too far? If you know your limits, when your half way there STOP. Cuz you still have to get back. Thats what I learnt.

[jactac]

Sorry I meant Amantadine NOT Amitriptyline.