hi all was just wondering if any ms or ppms sufferers has or has had the feeling that they were an inconvenience to there family ?
hiya
this i difficult question to answer cos…
‘ms or ppms sufferers has or has had the feeling that they were an inconvenience to there family’ is an issue for the person as its THEIR feeling/emotion. however if the family has blatantly said that you ARE an inconvenience then that a completely different issue to be addressed.
ellie x
its even harder if i dont write correctly!!!
should say-this is a difficult…
sorry!
ellie x
i know im a inconvenience to my brother, he says i should be working a 50 hour week plus look after mum and dad at the same time, while he works 40 hrs and does nothing to help, so now i enjoy it to the max being a very big inconvenience in his life
Talk! to your family alfa1, the more my son opens up and talks to us the better we all feel really. It is hard for the family sometimes to talk to the ‘MSer’ about things as we obviously dont know how bad they are feeling unless they tell us.
I am sure your not! an inconveniance to them and they would probably be horrified to know that is how you feel.
Jash xx
hiya again
i agree completely with jash. i was trying to help you decide if you are an inconvenience in ur own opinion and the family dont think the same at all… old cliche but talk/discussion is the only way to with any issue inc illness/poor physical/mental health.
ellie x
Hiya
Hmmm … family.
I moved house 90 miles to be back with family with my wife amongst many other reasons. Everything is so much easier for us now due to the flat ground and town location instead of hills and being in the middle of nowhere. Family, though …
My mum and dad are very old now but are great may be too much. However, my 3 sisters are different. Eldest does not phone or visit and will walk behind my mum and dad’s house to put her teenagers into dance clase and again will not say hi to them either.
Next eldest will phone once or twice a month and visit once every 2 or 3 months to me and parents.
The youngest will not phone but will next once a week and visit me once every 5 - 7 weeks and parents once a month.
Nephew - who is bit like a brother - well used to be - will not phone or visit me but will call my mum and dad once every week or 2 and visit them once a month.
We are all within walking distance. Some 10 mins - 20 mins away. They all have cars. I’m house bound without help. So I pretend that I’m still in Sheffield and think I am luck to have my wife. We can go out together to do ‘normal’ things now like shopping, cinema, feed the ducks, etc.
So family? All I can say is … yeah.
Take care,
Marty
Thanks for all your comments , I mentioned to my 19 year old daughter yesterday and she says her mam is all about herself and most likely won’t realy change .my wife does what she does , I have talked to her to try and get her to understand how I am feeling and to understand what I am going through, the symptoms the pain the emotions but I know it is hard for people to understand what people with ms / ppms are going through even if they read all the info available as they don’t suffer. I know they suffer in other ways , I have tried to help my wife understand but it’s as if she is saying you have ppms so get on with it.she understands some things about ppms and ms but not as much as I would like her to , I mention things and left the odd leaflets around but just glances at them . Again thanks for your comments, take care x