Been suffering with relapse symptoms since late September-mainly tingling, stiff legs, burning sensations and pain. Thought they were easing off . I didn’t get offered any steroids. Now I am suffering with wierd sensation in my ears-they feel blocked but I have not had a cold and there is no wax in them-got doctor to check. In last two days I have developed blowing sensation in left ear which I’m guessing could be tinnutis. It is constant feeels like a breeze blowing in ear. Could this be MS ? Legs have also started playing up again today, tingling and burning. I will phone MS nurse on Monday and ask for steroids I think as I am off to NZ in 2 weeks for holiday which was booked a year ago.
I was sorry to read about your problems. I can’t offer any suggestions there. I too have leg issues like you describe. They are ongoing and I have just got used to them being like that.
What I really wanted to say was to have a wonderful time in NZ. We went nearly 2 years ago and went round both N and S Island. It is an amazing country and so, so beautiful.
I hope others on here, and your MS Nurse, can offer practical help and advice.
I’ve not experienced a blowing sensation in the ears, but I can’t see any reason why it wouldn’t be a possible MS symptom. I’ve had a kind of thrumming / thumping sort of sensation in the ears which I’ve tended to only have at night, and over time it wears off (like many other MS symptoms, you only realise it’s gone when you think about it months later - your post reminded me!). And if your legs have started playing up again then it could well be connected to a relapse. By all means, run it past your MS nurse and if necessary, get some steroids before you go away.
I have problems with my left ear which are similar. I even thought about asking an ENT specialist to look at my most recent MRI to see if they could see what is going on.
Anyway, when you smile, do you hear a sort of spongy noise on that side? I do and from googling, I think it indicates a eustachian tube or middle ear problem.
When I’ve mentioned it to neuro they just check I can hear, which I can.
This is now top of my list for my GP because it is possible that it could be causing some of my vertigo.
Years ago way before dx of ms, I had this problem and it was so annoying. Kept going back to the dr and eventually he gave me antibiotics which did the trick. I haven’t had it since and don’t know if it’s a ms thing or not. I’m not ruling it out as I had a number of weird things happen over the years before I was dx.
I had that same blowing feeling in my left ear and still do although it’s inclined to vary
In intensity. Before going to my doctor , I did a bit of my own research and learned that it does effect about 5% of us who have MS. I also learned that a lot of doctors work on a ‘percentage scale’ with some ailments. I was told by my previous GP that this problem with my left ear was probably just an age thing and nothing to do with MS. I challenged him about this saying that I hope he really wasn’t working on a 'percentage chance ’ thing because I knew that about 5% of us were effected by this and that I could have been in that 5% . Anyway, I was referred to the ear specialist and put through all the tests and true enough, it did turn out to be caused by MS. OK I accept it when I was told that there wasn’t much that could be done for it but at least I know the reason why I have this sensation in my ear. If we know what the cause is it helps us accept and deal with it more easily in our daily lives and that is so important for each and everyone of us.
I started with ear problems about 3 years ago in my right ear, tinitus,muffeled and reduced hearing wrnt to doctors as thought it could be ms related was srnt to ent and audioligy various tests and mri and it turns out yo be nothing to do with ms but is actualy mineriers disease. Which is getting worse and im almost deaf in my right ear and like ms theres no cure
Hi Jen, oh yes the clicking, i have periods of it, and it drives me nuts, click, click, click, i did read that it can be an MS symptom to do with spasms. Its really annoying and quite loud too. I could start an orchestra with the clicking, buzzing, whoosing, ringing sounds i get in my head lol.
Hi Ben thanks for your reply the consultant that i saw at audioligy told me that hearing aid would not help me.i need something as i feel as if im almost deaf in my right ear.hopegully i can now get the vertigo under control as my dr has prescibed me a drug for it so lefs see.how does the ms affect you
For what it is worth for others, my GP has referred me to ENT, but while waiting she suggested I use Beconase (I also have post nasal drip- sorry if that’s TMI!) as she said it might help if it is a Eustachian tube problem. Too early to say if it will yet, but thought I’d share
Daz, I’ve had many MS symptoms, but fatigue is the one that always returns, interfering with everything, it limits work, play and socialising. I also get stiff legs and frequent cramps, and always have shooting neuro pains, but gabapentin really helps with those.
At first my virtigo and hearing problems were thought to be MS related, but the consultant at ENT said they were caused by Meniere’s. It’s been discussed on the forum in the past, but you’re the first other member to say you have both conditions.
It sounds like your vertigo is a lot more frequent then mine.
Hi Ben i hope the vertigo eases its a nightmare.i had to give up eork 3 years ago last relapse damaged mainly my right arm got nervr damage and pain,fatigue is a big problem aling with major memory and concentration problems also valance getting worse and anxietey and panic attacks. Dnt you just live this crappy disease lol
I have occasional ear problems, but they’re so infrequent that I’m sure it’s not an MS issue. My left ear feels blocked but there’s no wax build-up, my tinnitus is worse, yet my hearing seems more sensitive. This lasts for a day. The following day I suffer from vertigo. I’m reluctant to go to my GP with such a short-lived and infrequent problem, so I asked a pharmacist what I could take for the vertigo. He recommended cinnarizine, the active ingredient in Stugeron travel-sickness tablets.