Hi, I would just like some advice if possible. I have posted on here before, but not for a few weeks.
In summay I had ON in mid Feb and an MRI scan that concluded I had “likely MS”.
I was referred mistakenly to a neuro surgeon which wasted a couple of weeks and have finally received an appt to see a neuro in August.
This seems a very long time to me. I am very anxious and can’t seem to concentrate on getting on with my life. I know that I won’t get lots of answers when I do see him, but just feel that an expert opinion would help me to get my head round it.
I spoke to his secretary prior to receiving the appointment who told me that what I had was not urgent in neuro terms, which I can accept, but just don’t know how I will be able to manage for another 3 months.
I am lucky at the moment in that I have no disabilities, but altered sensation in my left arm and leg, and urgency when needing to pass urine. I also feel a bit dizzy and weird in wide open spaces. Having been completely blind in one eye, my sight has returned almost 100%
I’m just not doing a very good job trying to hold it together mentally.
What I’m thinking about is whether or not to see the neuro privately.
What do you think?