Does this all seem familiar to you?

New diagnosis and before diagnosis
1

Hi everyone. I don’t have MS, but am experiencing a whole load of symptoms that point to it. Back story: diagnosed with ME/CFS 10 years ago; severe to mild over those 10 years. I’m used to bone-cryshing fatigue, weak muscles and brain fog but the last few years has seen a great improvement, to the point where I started work again in April this year, 30 hours a week.

I have previously been diagnosed with bladder issues (retention) and an essential tremor, both being linked to my ME, apparently.

Three weeks ago I had a very heavy head cold -possibly COVID - and it’s left me with the worst ME symptoms I’ve had in 2-3 years, but - there’s a difference and some new symptoms that I’d like your advise on:

Usual:

Fatigue

Brain fog

Muscle weakness, especially legs

Tremor

Bladder issues

Blurred vision in the mornings

New symptoms:

The leg symptoms are strange this time - not just weak, but wobbly and stiff at the same time. I’m struggling to lift my left foot at the correct time, especially on a slight incline. It makes me need to think about walking, rather than just doing.

I’ve experienced pain in and around my rib cage, lasted 3 hours last time, felt like a squeeze and sharpness when breathing in. Very uncomfortable.

I’m wondering if this is all attributable to my ME, or if I need to talk to my GP about this?

Thanks in advance.

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I would definitely speak to my GP!!

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3

Well it can’t do any harm to speak to your GP: it’s obviously concerning you. So you could try to get to the bottom of it.

The thing is, the symptoms you have can probably be caused by a wide range of illnesses - ME, other things, or MS. The point of a GP is to get to someone with an open mind, who is aware of the chances of it being one thing or another.

MS also has a wide range of symptoms - and it’s not diagnosed on symptoms alone. So if they do think that’s a possibility, you’d need to see a neurologist and have MRI scans.

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