Random question does anyone’s fingers turn off. In my first relapse my right pinky and thumb turned off then my finger next to my pinky a few months later. Now my left hand has joined in I’m not sure when but in the last few weeks. It’s so annoying. And they’ve never recovered when I’ve taken steroids.
Hello 
Sorry to hear your having symptoms at the moment. My fingers on my left hand don’t turn off but sometimes touching things is literally painful, especially when touching clothes, it makes me whince at the horrible feeling! I had a relapse with my left fingers and arm quite awhile ago but every so often I get the symptoms in my fingers.
Hope your fingers turn back on very soon! xxx
Hello
Sorry to hear your having symptoms at the moment. My fingers on my left hand don’t turn off but sometimes touching things is literally painful, especially when touching clothes, it makes me whince at the horrible feeling! I had a relapse with my left fingers and arm quite awhile ago but every so often I get the symptoms in my fingers.
Hope your fingers turn back on very soon! xxx
Quite often my little finger and the one next to it stop working properly when I am trying to eat with a knife and fork.
for me, its holding onto something, I easily loose grip but I cant feel them falling out of my hand, its odd.
for me, its holding onto something, I easily loose grip but I cant feel them falling out of my hand, its odd.
Fingers and toes for me. Toes randomly go ‘missing’ as I put it which does feel a bit odd but you get used to it after a few years.
On my left hand the thumb and first finger are always numb/tingly so have very little sense of touch … until the weekend when I cut my first finger fairly deeply with my new kitchen knife. (I knew it was a bad idea to buy sharp knives!) The weird thing is I didn’t register the pain until I saw the blood welling up … Is that normal? It does have some feeling now though, typing is definitely painful with a very sore finger which is slowly healing (the cut is on the very tip just in the right place for touch typing).
Tracey x
At the end of my fore finger and thumb on right hand seams to lose blood it goes totally white and thinner even under the nail goes pale white. The rest of the fingers and hand is fine
Maybe should have clarified that a bit better. I can’t like wiggle my fingers in sync now the end 2 fingers join in when they feel like it. The left hand my pinky and ring finger are now going the same way. Don’t know when it happened.
Hey I get the “white finger” thing too, mainly the 3 fingers between my thumb and little finger especially on my right hand…I look like a corpse! And it’s ever so painful like my fingertips are in vices.
Oh few least its not just me, I thought I have a new disease whiteysephalitus or something
My fingers change colours too and if it’s cold go numb at finger tips.
This is such a strange diseSe polar bear