Hi, was wondering if anyone else has sore feet ? I relapsed in June an I have had number of different things going on, an few days back my feet starting feeling really cold an bit off pain on the bottom of the soles from my toes,then this morning when I got out of bed I nearly came down with a thud. The bottom off both feet were really sore an bit on the heels too i want to say its like I’ve been wearing 5 inch heels for too long but don’t have the relief of wen you take the shoes off,even siting with feet up I can feel the annoyance on the soles,my balance has suffered with this too, I could go on with my symptoms, would love to hear from people,thanks x
hi agnesgrace
i have sore feet too.
amitriptyline helps but i don’t like taking too many neuro painkillers because they all have side effects.
it does affect my balance too. so much so that i nearly called off my birthday night out.
however having a drink (or 20) seems to make the pain go away and my balance better - or am i just too drunk to notice it?
today i’m suffering from the first hangover of my 56th year
carole x
Hi, yes I do suffer with foot problems…mostly caused with not being able to walk! They hurt underneath too, and feel as if they are curling under me…if that makes any sense. Don`t you find a lot of our problems are so hard to describe? But at least, here, we do understand each other better than anywhere else?
I also have very painful heels. They feel tight all the time and if they touch the bed it is horrendous.I try to keep them supported on a stout pillow. A recent trial of pregabalin for pain relief produced unpleasant side effects. I think the pain is preferable to weight gain and messed up moods.
pollx
Hi,
I have very painful feet, although for me it’s on the tops of the feet, and I do not refer to it as “sore” - it’s more of a cold, crampy ache.
I know people use different descriptions for pain, so possibly what you call “sore” is not so very different from the pains I get, but I think of “sore” as similar to the pain you get when you burn yourself - i.e. some sensation of heat there. My foot pain does not involve heat at all - on the contrary, I keep feeling the urge to apply heat, because it’s so deep, and cold, and achey.
I have found this pain very resistant to treatment, and I’m not sure the neuro even fully understands what I’m talking about, as pain on the tops of the feet seems unusual. Physio weren’t much help either. Unfortunately, we did not take to each other from the word go, as I explained that diazepam helps. She was obviously very anti that, and asked whether I was sure, or whether I just thought it did.
Dumb question, in my opinion, because (1) How would I know? and (2) Does it really matter?
As far as I’m concerned, if I think something helps, then it does. I don’t really care if it’s doing it by placebo effect, or what - the end result is all that matters. So if I say something helps, it’s stupid to ask me if I’m sure, or only think so. Maybe it is only illusion, but if it’s powerful enough to help me, I honestly don’t care, and I’m certainly not going to reply: “On reflection, you’re right: I’ve just realised they don’t help at all, and I must have been imagining it!”
So I had little faith in her from that point, but went along with it all, to avoid getting a black mark for “refusing to help myself”. She could find nothing physical to explain my foot pain - she didn’t even think the spasticity was very pronounced. But she asked me to come back to see a specialist orthopaedist, to see if he could come up with anything. I was under the impression that a cast was going to be made of my feet, and custom orthotics made, just for me.
In the event, no such orthotics were prescribed. Instead, I was recommended some off-the-shelf orthotics, which took six weeks to come, and when they did, I found they were identical to half-a-dozen discarded pairs I had chucked in a drawer at home, because they hadn’t helped. So I am still no closer to finding out what causes it, or getting a proper fix.
My neuro has for some time been convinced there was a neuropathic (nerve) element, and, last visit, persuaded me to undertake a trial course of gabapentin. This made no difference whatsoever, which reinforces my belief it’s musculoskeletal, but I still don’t know exactly how/why.
Thinking back, foot pain was one of my earliest symptoms - many years before I was diagnosed, or even investigated for MS. I remember complaining that all shoes were badly made these days, and that it was impossible to find a pair that were comfortable. I had even bought pairs that were just about bearable in the shop, convincing myself they would be OK once they had given a little - but ended up never able to wear them. I am not just talking about high heels - I’m talking about ANY shoe - even the modest little courts I used to wear for work.
I don’t know what the answer is. At the moment, I only have one pair of stout walking boots and one pair of trainers I can more or less tolerate - no smart shoes at all. And last time I wore the trainers for a whole day, instead of just a couple of hours, I realised I might not be able to wear those any more either. I am dreading the walking boots wearing out, as they someday must, as I could find myself in the position of having no wearable shoes at all, and unable to leave the house.
I wish I had bought three pairs when I found any I was able to wear. Needless to say, they have been discontinued now, and although there are designs that look similar, I cannot bear them on my feet. Even my carpet slippers have become unwearable. They are mule-type slippers, made of a soft, velour-type material, but the edges of the slippers cut across the painful tops of my feet, so now I can only wear socks indoors (or the walking boots - nice!)
I am sorry this is not a very positive post, and not much help to you - least of all what’s to be done about it, but I do think foot pain is a very common aspect of MS.
Tina
x
yes but i will try and find my thread re this to save repeating myself!
ellie
http://professionals.mssociety.org.uk/forums/everyday-living/inflammed-toes
this it. maybe worth try cold to relieve?
ellie
Thanks you all for taking the time to reply, hearing from other people with ms is so nice because when you open up to friends and family they have no clue an no understanding of the way you tell them how it feels,but on here there is an understanding :0)
happy birthday day pigpen glad u had a nice night bet it was nice to walk drunk an be drunk
boudica you totally make sense and yeah ur right on here you get better answers an understanding than from anywhere else
anitra you are right if u know it helps then why not and I totally get your coldness my right foot feels like it’s been in the snow an hands on them is quite relaxing we’re when I’ve had numbness in my arms the last thing I want is for someone to touch them that’s were I feel you Boudica coz I couldn’t bear bed sheets touching.
thanks guys hope you all have a good day x
Thanks chocorange hope you got things sorted out x
I also have foot pain. It started in both heels / back of ankles simultaneously so I originally thought tendonitis. It doesn’t seem to fit symptoms of that. It’s worst first thing in the morning, after rest or after walking a longer distance than normal. GP tested for Rheumatoid Arthritis but no rheumatoid factor showed in blood test. Seeing the physio soon to check if it’s muscular. Otherwise GP will refer to rheumatology as an old knee x-ray showed early signs of osteoarthritis.
I never even considered it could be MS related so thanks for this post. Will mention at my next appointment.
Thanks.
Yes I have this tired sore feet pain as well when I stand for too long. It was my first noticeable symptom when I couldn’t stand all night in the pub for a night out, though i didn’t realise at the time. I don’t feel its bad enough to merit taking drugs as I prefer to take as little as possible, but I do try to pace my day so I’m not on my feet too long.
my feet and legs hurt all the time , and I find that anacin works for me…the combination of asa and caffeine seems better than other drugs. Also , I know what you mean about shoes not being comfortable…even though they seemed good for a few days. I have 4 pairs that i can wear , but they are worn badly on the right shoe , as that is the foot that drags. I took them to a shoemaker to be re-soled and the leather reconditioned…now I have my shoes back…hope they will last another few years
I have the same problem for 10 months and it’s driving me mad.It’s around my heel and foot and ankle and really affects my walking and balance.My go said it’s soft tissue damage,got anti inflammation tabs which kinda worked but didn’t stop it.Went for an X ray few weeks ago but nothing showed up.Gp sending me to orthopaedist to check.Don’t know what’s causing it,is it an ms thing or something else.
Jimmy