Hi all,
I’m Maddie, newbie to this forum, and I was diagnosed with Rapid Remitting MS back in November 2024. I have started my treatment of Ocrevus in February but have noticed that I’ve been feeling rubbish for the past couple of months constantly!
It doesn’t seem too dramatic to call the MS helpline and suggest any kind of relapse but at the same time i would be super helpful to understand if anyone else experiences this and if you have any tips on how to overcome this!
Asking for a friend 
Hi Maddie,
Yes on Ocrevus too and basically ill all the time. 
Normally not as bad but basically likely 10 months of being ill enough to be off work (good day) or just fully wiped out for a week/weeks.
Don’t really have any tips suppose I try to prioritise what can do each day or it’s easy to drift into just letting everything slide (guilty). Getting a few things done one day makes doing a few more the next day more likely.
Suppose also accept if you’re just wreaked (that took me a long time to get, that I wasn’t just lazy).
All the best,
Andrew
Hi Andy,
Really appreciate the response and more relieved that I’m not the only one!!
I think you’ve hit the nail on the head with accepting that some days we are just wiped out with no explanation and we shouldn’t feel guilty or think we’re just being lazy! I’m trying to keep a positive mindset on it all and not let it consume me when I’m having an off day.
Thanks
Maddie
Hi Maddie
I’m on Plegridy injections once a fortnight, 2-3 days of feeling like I have/have had a bout of flu every fortnight, better than the alternative relapses but seriously !?, the worst one frightened my hubby; headache bordering on migraine, chills, shivering uncontrollably, balance out the window hanging onto furniture to get out of the living room and up stairs on all fours!
They usually just leave me feeling utterly blech and wiped out.
My calendar blocks out 2 days after jab day, I give hubby plenty of warning, take paracetamol before jabbing myself and generally lurk in a pile of blankets and cat(s) on the sofa, watching K-dramas on Netflix for the duration.