Hi everyone,
I’m not sure I have the right to be posting here. But I’m not sure what else to do.
I know my symptoms link up with MS, but I also know that they can relate to a lot of other things.
I’ve been to the doctor and have had blood tests and physio appointments but I’ve been told my issues are anxiety. I feel like they see I’m on anxiety medication and just sort of pawn me off. I am open to it being that sort of issue, but as someone who has suffered with anxiety for a long time, I know that what I’m feeling right now isn’t normal for me or my body. I am quite bad at advocating for myself, it’s something I’m working on. But I have a doctor’s appointment on Thursday and I was thinking of asking for an MRI. I just wanted to ask if anyone has had any experience with this? And can I even ask for this? Or is it completely cheeky? I feel like things are just getting too much to deal with.
I’m going to list my symptoms below that make me believe it’s nerve related:
Patches of skin that are incredibly sore to the touch, fabric included.
Random tingling and numbness in part of my hand and foot.
Feeling weak and constantly, constantly exhausted. Midday I just crash and feel so tired that speaking feels so hard.
Headaches / my first migraine this year. This was the first time I got electric shock feelings in my face and at the nape of my neck.
Dizziness.
If I push my body too much I get an electric zap from below my knee into my foot, my leg then gives out from under me. This hasn’t happened in a while. I went to the physio for this and he told me it’s because of my ‘child bearing hips.’ Which doesn’t really help with the idea that I’m imagining it / is anxiety.
I think I could list a whole lot more but I don’t want to go on. I just feel so defeated and don’t know what else to do or what to fight for anymore. But I know if I don’t say anything in this appointment that nothing will get done.
My only shining light I think is an ENT referral but with the NHS it’s over a year wait - I believe this is for a deviated uvula? And my dizziness.
I hope I added in as much as I could.
Thank you in advance for the time you spent reading this<3
It is a relief to hear someone say that something strange is going on. With all the doctors say I sometimes second guess every symptom.
Thank you for taking the time to reply to me, Alison!
Keep notes. Symptoms and timings. No need for fine detail - just the headlines. It’s easy to forget what happened when, however memorably bizarre those things might have felt at the time.
I have RRMS and, for what it’s worth, my relapses have concentrated in particular areas, building and developing relentlessly over days or weeks before recovering much as they’re going to. The random things all over the place is the aspect of your story that sounds so unlike my MS. But, as I say, personal experience is all I have to draw upon.
Hello sorry you are suffering, it is so difficult to get things moving for a diagnosis to rule out MS, hopefully! I believe your doctor will need to refer you firstly to a neurologist, they will decide re MRI. I maybe wrong…but do ask your GP they are there for you/us and you should not hold back if you need help. Take care
Thank you for sharing your experience. It’s interesting to see how it manifests in different people.
And thank you for your advice. I have been taking plenty of notes and things seem to be getting done, slowly but surely.
The appointment went well! He did bring up an MRI himself but as you said, he can’t refer me. He sent me for certain X-Rays and if they don’t show anything, then he said he’ll refer me to someone else who can then refer me to a neurologist. It’s a big relief that I didn’t even have to mention these things myself. If I end up going down the specialist road then I know I’ll be waiting for a long time, as you said too!
I’m hopeful, but also so sick of living like this. I feel like my life is on pause and barely have the brain power to do simple things - which is just not how I thought I would feel at 25.
Thank you so much for taking the time to reply to me. It’s very appreciated:) I hope your week has been good to you so far