Am new to this so I hope I am doing this correctly!
I am a 30 year old female…diagnosed 7 years ago. I have relapsing remmitting MS which by a recent GP / DLA assessment means I am generally well! I, however disagree. I am currently on no treatment through my own choice. I tried beteferon 6 years ago for 5 months but was constantly ill and this prooved tricky with a full time, stressfull job. After an MRI last week (first being 7 years ago) and the amount of relapses I have had in the past two years, mostly involving my left side and eyes - my Neuro Consultant is meeting with me to discuss the options. I always have the usual niggly feelings and stiffness etc.
I stopped working 6 years ago due to my illness and wanting to start a family whilst I was still young enough and well enough to do so. I have not felt too good at all for the past 9 weeks. I dont think it has improved much due to the stress the DLA are currently putting me under! ! Three years ago after a long fight I was granted higher rate and I chose the car! Now after my renewal application failed, they have taken it off me and will be collecting my car on 21st of August. I am going to appeal with an independant panel but I am still waiting for the forms! I was granted the lower rate care componment indefinately 4 years ago. This time last year due to a massive relapse, I fell and broke my ankle. It hasnt healed properly at all and this is probably a mixture of my age and the fact I cnt always walk properly! I rely heavily on my car. With two young children (my responsibility I know) and a husband who works in London, it has helped me out hugely! Especially at being able to insure someone else for free by making a quick phonecall to enable a freind/family member to drive us around with enough space to hold my children and any others if it was a friend with children helping me out. This enables us to lead a relatively normal life and still having the option to leave the house! We do not get any help from the government at all. We have a mortgage and do everything right. I cant help feeling that surely this is something I am entitled to?!
I am sorry for waffling on.
I would really appreciate and help / advice!