Hi there Just some advice/info. I’m in diagnostic stages but am having a hell of a time when out and about at the moment. Daylight and artificial light seems to send my body into melt down. I get severely dizzy, I get electric shocks throughout my body, my feet feel spongy and I can’t walk too well or coordinate . Its every time I leave the house now and it’s upsetting to say the least. Can anyone relate and or maybe identify what this could be. Thank you
Hi Talulla
I once described to my neuro a visit to the Trafford Centre as sensory overload.
mine was caused by the hundreds of small children in a frenzy of excitement.
The lighting and the sparkly floors (never knew how much attention I paid to floors) the sounds all echoing.
Maybe what you are experiencing could be your brain interpreting things in a peculiar way.
Let your neuro know.
Carole x
1 Like
I get this and have done since diagnosis.I cant go into stores without feeling like this.I am ok for a few minutes then the feeling like i am about to pass out and be sick starts and when i get outside i start to feel better.Asda lights seem to be the worse for me.My dentist had new lights fitted last year and i mentioned to him how bad they were for me and he said a lot of the staff had started to feel ill since he changed them.Its like a sensitivity to the artificial lighting that causes all sort of issues,especially people with neurological problems.I avoid big stores and have done for a long time.I also can be affected by natural daylight too depending on what sort of day it is.I wear lightly tinted glasses and they help me.
Hi carole Yes I was thinking it may be sensory. It’s hideous what an overload can do eh? Thanks for the reply x
Thanks Jaydee Yes it’s rotten how the body reacts - it’s a shock to me how haywire my body goes. I will look into tinted specs Thank you x
I get very dizzy sometimes. It tends to be worse in the morning! I am also affected by light (mainly artificial). I can’t go into certain shops. The worst shop for me is Morrisons. As soon as I walk in the shop I start to feel disorientated and dizzy. I also start to feel sick it is a horrible feeling!
It really is isn’t it? Getting out is a big struggle now because of it. Best wishes x
Hi everybody I am new to all this so please bare with me I understand the sensory overload it is overwhelming and can leave me having to adjust to the situation along with covid as well it is very stressful. I was wondering if anyone can advise me or help. I was diagnosed in 2001 my first symptoms ere bladder frequency, pins and needles in my arms back, face and hands. It left me with pins and needles in my hands. 2 weeks ago I had my first flu vaccine ever due to covid, I had finished a course of antibiotics a week previously for an ongoing uti a few hours after the vaccine I started to get a heavy sensation in my leg pins and needles that are now all over with back pain and joint pain and a stinging pricking sensation and headaches and I am worried that is is getting worse even my under carriage today feels weird. I contacted my ms nurse few days ago and she said it could be a post vaccine reaction and to get another uti test. If anyone can help I would be so grateful or if anyone has had a similar reaction, I am trying to keep calm but very worried if I’ll get better or not. Thank you all.
Hi Capel
UTIs can cause mayhem with MS, I feel that I have at long last got them somewhat under control.
The bowel and bladder clinics are excellent, I was taught how to self catheterise which is an eye opener, I feel that I have completely emptied my bladder but then get another 100 mls with a catheter.
I take a maintenance dose of trimethoprim (1 tablet).
It’s incredible how varied our reactions are to vaccines. I have had the flu vaccine for the last ten years and get no reactions at all. Perhaps it was due to it being your first vaccination,
Hope it all settles down soon.