I know burning muscles are a part of ms but they are driving me mad This causes me more problems with my walking than my lack of muscles working. The burning pain feels like having lactic acid after too much excercise but only after a few steps. I went in a hot bath today and didn’t want to come out. Also everything clicks all the time is this part of ms. Didn’t do that before all this started in the summer. And my bones are sore to push.
I’m fed up with aching and hurting all the time too. I don’t get burning though. I do click a lot, but I assumed it was middle age and because I am walking and holding myself funny, but maybe it is a direct result of MS? All this started in the summer for me too. Some days I think I have accepted it and others I realise I really haven’t!
Hi puddling lover what type of ms do you have? Mines is rrms but getting a scan next week as it seems to highly active. I can use my arms now but everything is stiff. I was chasing my son 8 months pregnant last year now one foot infront the other a hassle. Do you find the more you do the worse you are? Do you take pills? I’m on 600 pregabilin, 60 baclofen, and Amitripiline at night. Every muscle is screaming at me. I haven’t been doing much then in January I decided this isn’t beating me I’ve now gone stiffer and sore from my neck, feet, legs, arms even my back and legs have joined in. It’s p*ssin me off. I can physically do most stuff with sheer bloomin determination but my body is screaming at me. I have had my daughter all day since Sunday lSt week which is a first she’s now starting to cry when I leave her at mums at night. And it breaks my heart. She’s been grumping more but when she’s down with me she giggles and giggles and this keeps me going. They think having her triggered so they think but I would die for them. But she is physically hurting me. Morning is always rubbish for me. I had a hot bath yesterday and I swear my muscles were raging at me when I came out appears they like heat, maybe I need to move to the Bahamas x
I have RRMS. My first attack was August when I was hospitalised, then I had relapses in October and December. I am so much better than I was, but I have remaining symptoms, as whinged about above lol. I only got diagnosed formally last month. I’m waiting to go on DMDs and I take gabapentin. I’m rubbish in the morning and evenings, so I only seem to function properly between 11 and 6. It’s unusual for people with MS to like heat I’m told. I think I’m bad with it (I was overheating in hospital) but I was in hospital until September, so I haven’t experienced much sun yet. I used to be a sun worshiper, so it will be interesting! I can’t imagine how hard it must be having kids to look after when all you need to do is lie down.
I seem to be missing quite a few leg muscles my relapse in dec seemed to add to my June relapse. I kept getting put home in June took till September to get steroids. I know I should like heat I don’t like heat in places but the bath is so soothing. I’m not getting a balance of resting I seize up on resting time so I keep going and going. I started dmds in December but was summonsed by neuro week and a half ago as she wanted to see me she’s like things are worse than I thought so I’m getting head and spine MRI with dye and moving to second line treatment. X
I was told I was in between first and second line treatment with 3 relapses in 5 months, so Oxford will be making the decision next month. I assume I will be going in Copaxone, what are you on? I seize up too, but generally only between 6 in the evening and 11 in the morning - if you saw me walking at midday and then at 10pm you would think I was two different people! I have found that gentle stretching (even though it is hard and I don’t move far) helps a bit before I go to bed. I was given steroids in hospital but they didn’t ease my symptoms. Good luck with the treatment.
I’m on extavia. I’ve had 3 different relapses and I think 2 milder ones not registered ones in 6 months. So she wants to see what’s happening. I’m kind of ready to start second line, do your bones feel sore to touch? X
I wouldn’t say so, it’s more my hips in particular seize up and I ache from walking funny and limping slightly (I also had a DVT and my calf muscle is still really sore all the time). I really hope any new meds help you, it sounds like you are having a hard time. I was at my worst when I came out of hospital and at the beginning of my second relapse. I try not to think about possible future relapses, as each one has left me with residual symptoms.
I def know the hips seizing feeling. I don’t limp I ‘ok’ walking it just takes so much effort. Hopefully this new scan will shed some light and try and ease the constant relapses. Hope you continue to feel ‘better’ x