I saw my consultant on 20th August and the diagnosis was confirmed: Primary Progressive MS.
The consultant prescribed Baclofen and told me I would be contacted by the MS nurse in three to four months time. I went home somewhat stunned as up to the diagnosis all I had was a painful, troublesome right leg, which I hoped could be fixed, and am still trying to get over the shock of the diagnosis.
My consultant seemed to think that my MS had been present for about three years but I think it could have been very much longer than that, possibly as much as twenty years, the period of time my leg has been troublesome.
During the latter part of 2017, prior to my diagnosis I was suffering from a ‘fear of walking’ phobia caused by the troubles with my leg and heavy falls I had suffered. The anxiety was so bad that I was hallucinating, in that I could stand still and feel my feet slip from under me although I hadn’t moved at all. Medication has relieved most of the phobia. At that time, pain in my leg was sometimes unbearable.
I don’t really know what to expect in the future, as if I am correct that my MS has been there for twenty years it has been quiet for most of that time apart for the troubles with my leg.
Thank you for reading folks, any comments to help a newbie would be appreciated.
Best wishes, Blazer