I am new to the forum and have enjoyed reading many of the posts . My troubles have been ongoing for many years(measles encephalitis aged 5 and epilepsey ,last siezure 14 years ago)I am 53 now and have been suffering leg pain and weakness,strange tingling pins and needles in fingers and toes and walking in a “different” way.
My consultant at the time, 14 years ago said a spinal manipulation under general anaesthetic would relieve the pressure and tightness and a team of physios would rededucate me in walking correctly.The pain after the procedure was horrendus,physios did’nt or could’nt help. Referred to a pain clinic ,conclusion of which was “its just pain ,adapt life to live with it”
I have been doing incredibly well in doing this,telling the enemy within (pain) that there was only one winner,and it’s going to be me,so do one . I never darkened my doctors door again and paid for private physio,bowen technique,alexander technique.accupuncture,gym, bootcamp etc etc.
Last year I had 2 very nasty and serious infections and was on a antibiotic drip in hospital on both occasions.Since then my symptoms have got a whole lot worse I have to use a walking stick most of the time ,cant cross a road by myself,bladder and bowel difficulties ,pain in right leg,falling a lot,confusion and feeling like things are spinning,but not dizzy.
Brain scan showed dawsons fingers ,u fibres and other lesions,back scan has also showed lesions, lumbar puncture next week.The neuro said that I have M.S and have had it for a long time.she is going to be in touch again once all the results are in. Perhaps then I will know whats going on.I am still working, reduced hours, due to fantastic employers.
Do you think I may get answers soon ? I have 2 beautiful grandchildren and had never imagined this was going to happen.I want to spend time having picnics and playing in the park with them,not thinking of whats easily accessible and a safe place for me to have them.Boring
I am sorry to moan and winge and whine ,it’s not my style,but I am reaching the end of my tether. Sorry.I know that many of you who will be reading this,will be a whole lot worse than me. I admire you. x