A few of the main muscle groups have decoded to go AWOL during last relapse and this relapse. I’ve been advised by neuro to rest as much as possible. My legs are heavy and stiff when I get up then they get going but get tired quickly and the muscles feel like they’re burning. I used to be a champion dancer and I feel like I’ve done a championship doing very little things. The neuro says I’ve had to 2 nasty relapses and that I hadn’t really recovered from the first. It’s a bit of a long story I apologise now. I had a baby in April then left my husband in May he moved out in June I started getting really cold feet and like pins and needles phoned nhs 24 they said to see gp he wasn’t too concerned at that point. Then during the next few weeks strange things happened like my arm went completely numb other doc said hyperventilating due to stress and my muscles would burn for a few hours but only happened when I went to tesco or met people who asked about the marriage breakdown. Then my ex moved out and a week later my right side stopped working couldn’t write had drop foot my arm felt like there was nothing there. Gotput on diazepam because I was ‘stressed’ that did nothing to help then gp stepped in a month later and admitted me to hospital had ct scan lumber puncture and put home. To wait for MRI scan. Got the scan 3 weeks later was on steroids the next week treated as cis triggered by child birth. Things kept being strange but got told to get on with it fast forward to November had been pushing myseld was exhausted and woke up feeling really drunk staggered down the stairs it was my dog that got me up. Phoned mum in the morning to come and get me got admitted to hospital double vision my legs and arms were burning when ever I moved and my face looked like I’d had a stroke. Put on steroids straight away and told ms they did loads of prodding. This last week I’ve been feeling tired and stressed left side burning def weakness in left side I’ve started extavia injections I’ve a uti, sinus infection/cold thrush on my tongue from antibiotics. Santa is coming my muscles are aching they work when they feel like it. Can relapses last ages? X sorry for the ramble there is more to the story but I’m knAckered writing it. One other thing I’ve hardly any reflexes has anyone been similar thanks em x
Hi Em
I’m a likely PPMS candidate so I can’t offer too much advice on that side of things but I wanted to say Hi and my word, you’ve been through it!
You have been so brave and you will cope just fine, as you sound like you won’t let it beat you - stress seems to be a common factor in rotten relapses
It’s an awful time of year to be feeling like you do so I hope you’re OK and hope you’ll get some useful advice here. You’ll certainly find you’re not alone
Take care Em
Sonia x
Hi Em,
I’m sorry to hear about your diagnosis. It must have come as a great shock, so soon after first symptoms, and with everything else that’s been happening. I wasn’t really very surprised about mine, because I’d been feeling ill for years.
Yes, I’m sorry to say, but relapses can last ages - i.e. months. I know that will not be news you want to hear, but perhaps it might reassure you, too, that there is nothing abnormal so far about how long it’s taking, and it’s much too soon to be thinking it won’t get better, because most relapses do - but in their own good time. If you’ve already had steroids, I don’t think there’s a lot else you can do, except rest and be sensible, as advised.
I know that’s easier said than done, first Christmas with a new baby, but do only what absolutely has to be done. Don’t push yourself to do things a baby won’t know about, and won’t care, just as long as Mummy is there.
Stress tends to make symptoms worse, so prioritise what has to be done. If it’s not essential, strike it off the list.
MS can cause either dulled/diminished reflexes OR “brisk” reflexes - a reflex that is more pronounced than usual. Symptoms depend on where lesions form - which is random. Probably, no two people have a set of lesions that are exactly alike, so they won’t have identical symptoms, either.
Tina
x
Hi Not want to want to hear, but my current relapse is 8 mths in now , symptoms have faded but it’s still going Take care Gray