Hi Evereyone I’m new on here I’ve never been in a forum before so if I’ve done This wrong I do apologize. This is my story I was diagnosed two years ago just after I turned forty, when I was 27 I went blind in my left eye, I thought it was stress because I’d just split up with my partner of ten years, after going to hospital the doctor told me he couldn’t see anything wrong, six weeks later it was back to normal. At 38 I had optic neuritis and there it all started. Now I’m learning how to deal with my body everyday, I know that people on here will understand me more than my family and friends. Last week I was diagnosed with vasovagal syncope, I was shocked because I thought I was only dealing with ms. Just wanted to say hello and share abit of my story
hi simmi
your post is perfect!
i had to google vasovagal syncope and it sounds like my postural hypotension.
my blood pressure has always been low and now i faint if i look up or bend down.
i don’t know what the name is of what i have.
tis a bugger anyway.
it gave me a lot to write about in my application for PIP.
lovely to meet you
carole x
Hi Simmi,
Welcome to the forum, I am 33 and yet to be diagnosed.
There are lots of lovely, helpful, factual people on this forum.
Your definately in good hands here.
Cat
Hi Carole & Cat I think this is the hardest bit writing on here, Thank you for your help Carole and sorry for being a pain, It’s nice to talk to people who understands living with ms so I don’t have to bother my friends I don’t talk about it because they might get sick of me going on. Are you having lots of tests cat? I was going for MRI and LP thinking I was ok I only had a poorly eye ( optic neuritis ) I had no other symptoms, two years later my body started changing. I’m still learning about my ms, it’s weird how different things happen to your body and you have to work out is it my ms or is it my age. Simmi x
Hi Simmi Yes lots of tests. Too many I’m hoping these last 2 I’m waiting the results for give me answers. We will see. xx
Good luck Cat I hope you get some answers soon, it’s a long process and can get you down x