i have not be on forum for a while, mainly cause thinking about MS and the way it controls my life is making me so drepressed and I feel so alone and am back to sitting crying at night when my girls are not around.
Ever since I took my attack over 2 years ago my life has been turned upside down. I lost most of the sight in my right eye which means I struggle with everyday tasks. The attack was so bad that I am still suffering badly with migraines, pins and needles, numbness, dizziness, burning sensation, horrible fatigue, depression and may other symptoms. I’ve tried tablets that would work for a short time and then the does would have to be upped and now I have decided to come off all drugs because off side effects and a massive weight gain.
I feel lost what to do with symptoms. I’ve spoke to my MS Nurse well 3 different one cause they keep changing me and not giving me reason why. They don’t seem to give me any answers except you need to go back onto some sort of drugs. At moment I don’t want drugs as don’t fell they are helping.
i also tried speaking to my neurologist but my one year appointment when to 16 months and then that was cancelled and now it’s nearly a 2 year appointments.
I walked around life just wishing for bedtime each day. I have no life and single mum too two beautiful girls. I feel like I struggling to deal with them and get upset cause my oldest is my carer. The girls goes to there dads most weekend and all I do is lie in bed or the odd time I go out with friend and take photos but then once I am out for hour I needing to go home.
Sorry just struggling and don’t know what to do. I