Don’t feel so good today, I think the cold weather and dark nights have left me feeling depressed and i feel more exhausted than usual, i cant be bothered getting dressed just feel sad and useless. I was at the hospital yesterday and the consultant suggested Botox injections for the bladder i’m waking up so much every night its exhausting. I really don’t fancy botox I think id rather suffer with the frequency especially as ive now read up on the side affects. has anyone got any advice?
Hi hun, do you take any meds for your bladder? I take betmiga and that seems to slow the frequency. I completely understand your anxiety about botox - I’ve never even wanted it in face
I’m with you on the gloom, I’m off most meds right now for trial and my legs feel like they’re getting worse by the day, so I’m really grumpy. This time next week, I’d have had my final appointment in London so will be relaxing with some gabapentin & baclofen and hopefully persuade my husband to rub in some magnesium oil.
I hope something will make you feel brighter soon. I’m going to try to post a picture of Cyril to make you smile
Hope your feeling a bit brighter. I have been having boric injections in my ham strings. I can’t say they have done much foot. I used to take dantrium I think it was called for bladder control but now have supa pubic catheter and it is magnificent I have been catheterised for several years now. I was worried about it but it really made a massive difference to me. I wish I had done it earlier. Have you seen a continence nurse? My one has been brilliant over the years.XXX Don
I’m sorry I didn’t see your post earlier but I’ve only just turned my laptop on. Yes, it’s just past five in the morning; I’m weird. At the end of the eighties-1986-1991 I used to go to Froddy four times a week. In the winter, (like now) I thought the whole of the world was depressing. I would turn up at 3.30 but after my second pupil it was getting dark. That’s when I used to celebrate my friendships. Everyone was so warm and inviting. It was a symphony of tea and biscuits and “can I use your loo please.”
I always spent far too long in that lovely town and on my way home up the M53 I would see glimmers of the Northern Lights and get back to my parents with a surprise bottle of whisky. They were very poor in the eighties and nineties. (Thank-you Thatcher).
As far as botox is concerned; it’s a case of your tolerance. It sounds intrusive but we’re very good ay weighing out the pros and cons. Being a bloke, I have many good ways of dealing with the urgency and inconvenience.
Give it a go and see how it goes. It’s one of my favourite acronyms: SHIG it!2
Thanks Sonia, Id love to see him, i tried the link but its not available never mind Now just remind me who is Cyril? I think he must be some kind of bird… or maybe your neighbour or lodger??? see you’ve made me laugh already.
Thanks Don, m just trying to ride out the sad thoughts, yesterday was a sad hopeless useless day where i dwelt on all the losses but I took my self on one side and told myself it wasn’t all bad, I went on a good website with a lot of positive thinking like mindfulness stuff and half full instead of nearly empty stuff and also my friend/ Carer came and she took me out i was tired and didn’t want to go but it did me good.
Botex really scares me…Im trying to stop the clock or rather turn i back. I dont want to get more disabled at the moment I fool myself and keep pretending i’m normal or if that fails i try to laugh at the situation…a bit of gallows humour is good.
Sonia, I take betmiga and have now been told to take it alongside vesacare, I used to take vesacare before taking betmiga so i’ll see if it makes a difference taking them together. My problem is the frequency urgency feeling, its awful my day is ruled by the toilet…my kids laugh…they joke that “mums always desperate for a wee” I have my own lovely on suite …a commode next to my bed, but on a positive note im lucky so far i’m not incontinent unless i jump laugh or sneeze…not doing so bad after 7 children. The worry is would Botox stop me frm being able to empty my bladder? , i feel a real panic about that, and also the procedure doesn’t sound great usually they put you to sleep, i may have to have it under local, the last time i had a general anaesthetic i was really poorly in fact that was when my walking finally gave up.
Thanks Steve, Frodsham is a lovely place, I love living here, we moved here in 2003 Lee had to move with his job, we come from Bolton. its funny i always remember being told that in Frodsham everybody knew everyone, and its true, for a while i felt uneasy having children with Autism does make you stand out and now i’m in wheelchair with Frazer walking by my side I cant hide, but i have to say i love it here and the people here are lovely Frodsham has real sense of community.
I hope you are feeling brighter today, I am with you on the doom and gloom roundabout unfortunately. I think it’s cos we have had grey days, wet days, darkness appearing mid afternoon, all going to make the days dark and dismal.
Hang in there, today here there is sun, and it has cheered me up a tad, so I hope the sun is shining on you as well.
Just wanted to say I have Botox in my bladder and think it’s brilliant!
The first time was done under a general anaesthetic because they were going to check things were ok whilst doing it. Now I have it done every 9 months under a local and it’s not as scary as it sounds; uncomfortable but certainly not painful.
Yes, it does mean I self catheterise but it also means I don’t have to get up in the night! I tend to catheterise around 8.30pm and don’t go again until I get up around 8am (and then I’m not desperate!)I can go normally a little bit but it’s comfier to catheterise and then know you’re empty and won’t need to go again for many hours!
Shelley. You are not useless and I’m sorry you’re sad. Fraser probably needs a cuddle and you stay in bed if you need, I know it will pass because you have a full and proactive life and it’s not easy but you’re very much needed. Take care xxx
ps. Between bladder& bowel issues - frequency/urgency for both and bladder retention, I also spend a lot of time in the loo! Being shortsighted and having nystagmus & tremors,the idea of self-cath frightens the life out of me. I was going to blog about bladder issues very soon x
Well Shelley, you`ve had such a lot of lovely, encouraging and kind replies. They always help, dont they?
Frodsham? That`s near Delamere isnt it? We have stayed on the Caravan and Camping site there many times. it surely is a beautiful area. Lucky you to live there and have wonderful neighbours too!
Like the rest of us hereabouts…I hate winter…dark nights and cold days. The thing that gets me through them is to plan a short holiday for spring and having it to look forward to makes such a difference.
And what about that cheeky Cyril? What a fine specimen he is, eh?
((((((((((((hugs))))))))))))))) hope you feel a bit better now Michelle,it wont be long until the shortest day 21st dec and the day after that the days start getting longer and spring will be just around the corner,I love the spring and the daffodils and tulips.