Anne Hi All So that nobody is under any illusions about our status having MS. Not just those on DMD’S. Please go to Garry’s post 16.03.2020. On this section under heading Vulnerable -Corinavirus. He has put a link there to the Gov website. It states there VERY CLEARLY, we are in the high risk category. Please pass this info on. We have been told. Now we need to action this advice. We do not want to be in Italy’s situation. Did you see the distressing hospital footage on the news last night? An Italian hospital. Inundated with seriously ill people on ventilators. The nurse clearly over worked and distressed by it all. Anne
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Hi, yes a friend texted me last night, we both have spms and she told me, I cancelled a dentist appt and massage today, didn’t wan to risk it, my husband’s my carer and he’s being mindful to, stay safe everyone.
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Thank you for this I am self isolating. In fact I have been doing so for months due to a broken leg. Am used to it now. My only worry is that my husband gets it and passes it on to me. I am secondary progressive
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There’s enough information on the homepage here.
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I’m working at a primary school and have as of tomorrow decided to self isolate. I have just finished a round of mavenclad so not feeling too happy about this. Stay safe everyone Katy
Hi, I am so confused. I emailed my neurologist and asked if I was in the vulnerable group and do I need to isolate for 3 months. He said 'in a word - no '. So, am I definitely a vulnerable person? Do I have to stay in for 3 months? ? I won’t bother asking my neurologist anything, I’ve already had problems with him recently and want to change to a different consultant and I know he won’t explain anything to me. I am on tecfidera which isn’t supposed to really affect the immune system. Help so confused!
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I am confused too, the more i read the info on social distancing the more confused i am.I know i am a vulnerable person due to my MS but i DONT think i have to self isolate for 12 week as i read it i have to avoid mixing with a lot of people and crowds and public transport but i think i am ok with having my daughter and grandaughter coming to see me or am I?I would jut like someone to tell me as i just dont know what to do i dont want to stop them coming if they dont have to.Why is anything to do with the govt explaining things so complicated?
I’m getting more and more annoyed at the lack of clarity this government are giving to people , it’s driving me insane. My anxiety is rocketing, I’m high risk for other reasons aswell as MS! Heart disease and asthma being the other 2 and my husband also is high risk, he’s heart disease, high blood pressure and is on two different immunosuppressant drugs which he’s now stopped taking. He’s going in to work he says until the weekend as the guidelines say at the moment and I’m going out of my mind. My grandchildren are still in school yet they say avoid mass gatherings, I know this is all just so uncertain but my god they’re doing an awful job with the way they’re handling it. My advice would be do what is right for you and your families and god help us
I am very confused too. It says I am a vulnerable person due to ms. I work part time.The social distancing guidelines say work from home if you are able to. This is not an option for me. It doesn’t actually say don’t go to work. I am assuming that if I decide not to work that I won’t be paid. I really don’t know what is the best thing to do.
I am just going to do what i have been doing from the start and thats being careful,avoid all crowds.stay indoors a lot and keep my distance from everyone and keep cleaning things we touch a lot in the house.I am fed up of conflicing advice its going to drive us nuts.
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It clearly states on the .Gov site under those classed as “vulnerable” people with MS !
My company have sent me home today, even though I have no symptoms, to self isolate indefinitely & be “shielded”, again as per Government advice .
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Vulnerable or not, it all comes down to common sense. As does the idiots panic buying.
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My nuero told me if you have MS and are on DMD that immunesuppress then you must self isolate. If you have MS and do not take drugs etc, then there is no need to panic.
I have been ill since 2020. been in contact with lots of things like flu and such like. when did we are were we told to self isolate?
use your common. even if you self isolate you can still go out for a walk and get fresh air.
It CLEARLY SAYS if you are at high risk even under 70 with asthma, heart disease you SHOULD SELF ISOLATE, its written in all the guidelines.
so you should RaggyAnnie be self isolating for those illnesses.
Your husband is at risk too.
keep the kids at school they are the muck magnets. they have at the moment in my area right.
CHICKEN POX
WHOOPING COUGH
NORO VIRUS
MUMPS.
All these diseases are in my area with the children. anyone of those could kill an adult without MS.
do not read the papers, there are official links out there with clear guidelines.
ROLO put this up. it is very CLEAR well it is to me. You are a VULNERABLE ADULT. with or without MS hunny. xxxx
stay safe you should be self isolating and so should your husband, he should be working from home if he can.
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EXACTLY Scudger. i totally agree.
hi jactac that advise is for social distancing if you are vulnerable group including high BMI, and learning difficulties, ms etc.
Social distancing measures are steps you can take to reduce the social interaction between people. This will help reduce the transmission of coronavirus (COVID-19).
They are:
- Avoid contact with someone who is displaying symptoms of coronavirus (COVID-19). These symptoms include high temperature and/or new and continuous cough
- Avoid non-essential use of public transport, varying your travel times to avoid rush hour, when possible
- Work from home, where possible. Your employer should support you to do this. Please refer to employer guidance for more information
- Avoid large gatherings, and gatherings in smaller public spaces such as pubs, cinemas, restaurants, theatres, bars, clubs
- Avoid gatherings with friends and family. Keep in touch using remote technology such as phone, internet, and social media
- Use telephone or online services to contact your GP or other essential services
Everyone should be trying to follow these measures as much as is pragmatic.
We strongly advise you to follow the above measures as much as you can and to significantly limit your face-to-face interaction with friends and family if possible, particularly if you:
- are over 70
- have an underlying health condition
- are pregnant
This advice is likely to be in place for some weeks.
Yes, but I think the gist of the topic is the confusion around being “vulnerable”, are people with MS classed as being in the "Vulnerable " group, which we are.
So on that note, follow the the guide lines that the government have put out.
I am sorry to say this. I cannot u understand why people are still confused… This is obviously a very serious situation now. Globally. You only have to look at the news. The terrible overwhelming situation I Italy. Just a little way from us. France. In complete lockdown. These countries are not doing it for fun. This is absolutely necessary. That was totally unprofessional of an MS specialist to say we are not vulnerable. It makes me very very angry to hear that. Britain has clearly said. Everyone where possible should be social distancing. That means. No families friends coming over. People who dont live together should not be visiting one another. No Mothers Day get togethers this weekend. I know this is hard. But. Do do we want to get through this with as few deaths as we can? Come on everyone. Stop panicking. Stop buying up everything. Look this thing in the eye and do what we are told. Now. Otherwise we have been told to expect 250,000 deaths… Do I need to say more? Keep safe.
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The confusion came from people giving the wrong advice on here about self isolating for 12 week you only have to do that in certain circumstances, like if your immune system is suppressed if on a DMD or chemotherapy.I told my family i had to self isolate for 12 week when infact i dont.I have read the govt guidelines and now know i DONT have to self isolate for 12 weeks i just have to use common sense and do what i was doing anyway.
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