I was diagnosed with rrms 2years ago.I saw my consultant and nurse last week to start on 2nd year of cladribine. I mentioned to him that I was getting a lot of symptoms at the moment. Eye pain,extreme fatigue,muscle pain and memory problems. He basically told me that my mood seemed"very low" and I need to see my GP to up my citalopram dose,sort myself out and basically get a grip. He said the symptoms I was getting were not MS,he told me to see an optician and get my eyes tested(I already have and wear glasses for reading),the pain and fatigue were not part of the MS and implied that every symptoms I have was linked to something else. This is at an MS’centre of excellence’. I came home and wanted to cry and never go back. My appointment was meant to be with the consultant but it consisted of 10 minutes with the nurse and her having to drag him into her room for 2 minutes to see me. Has anybody else experienced treatment like this?Is this all in my head? And are these symptoms not part of Ms? Any advice would be very much appreciated
Hi there! Sounds to me like your consultant needs his head checking! Are you able to see a different consultant there? Agreed that the problems with your eyes could be caused by something else which a visit to an optician could rule out, but the your symptoms seem, in my view, to be pretty common for people with MS.
My advice would be to not let this particular consultant ride roughshod over your symptoms and perhaps ask for a second opinion. So hold your head up high, know that you’re definitely not going mad, and join the scrum to find a consultant who has at least read one book about MS
Good luck!
Hi, I agree with Flopsy1. Don’t feel bad just because someone isn’t doing their job. I’ve had lots of neurologists tell me my symptoms are not MS but they haven’t told me what there are if they are not MS. If a neurologist is not a MS Specialist they don’t know what they are talking about. They only know basic Neurology so they have no right to make you feel bad. They should feel bad for not knowing what they are talking about. Try to see an MS Specialist. They seem like unicorns but there must be at least one there. Keep trying.
Wow! What a rotten consultation that was! I don’t know anything about cladribine…but does it cause side effects which could explain your new symptoms? Centre of Excellence indeed! I went into hospital in Liverpool in December, to a Neuroscience centre of excellence…it certainly was too! Hope you`re feeling better now chick xx Boudsx