Our 28 year old son (J) had what appeared to be a stroke, two years ago this week. He started with a numb leg, which spread up the trunk and arm and eventually to his face, which drooped quite significantly. Initial diagnosis was possible MS but then after a CT scan we were told it was a stroke. He had double vision and speech problems but recovered reasonably well, with sight and speech eventually returning to normal. However, he has been suffering with numbness and tingling of limbs, restless legs, headaches, extreme tiredness as well as insomnia and occasionally we struggle to understand some of his speech. These symptoms aren’t all happening at once and not every day. Some days he’ll have one or two of the symptoms then a different set of symptoms the next day but occasionally he’ll get a day where he has none.
He had a lumbar puncture last year and the results say ‘unmatched oligoclonal bands’ and we have no idea what this means because his consultant says he does not have MS and probably didn’t have a stroke but more likely a brainstem demyelination. We aren’t convinced by this, would the demyelination mimic a stroke or MS?
Thanks for any advice