Went to see GP yesterday as my left leg is now playing up and I thought I may be compensating for the right leg which is still a bit weak following the relapse which started in March. He disagreed as I have a new patch of numbness on left foot and similar feelings of cramp in the calf when I walk over 30m or so and he thinks this may be the start of a new relapse. It soon became apparent though that he knows very little about MS and I felt he was using me as a learning curve. At least he did examine me - when I had the relapse in March, the GP at that time held a telephone consultation with me and asked me to drop a urine sample in then prescribed the steroids. This GP wanted to give me steroids again even though my leg hasn’t seized up it is just a bit uncomfortable. He decided to fax my neuro for advice and to ask if he should prescribe steroids. What I really wanted was a referral for physio.
Luckily, yesterday I had phoned Addenbrooke’s anyway to chase up my routine appointment which is due in August as they hadn’t made me one when I was there in February. The receptionist phoned me back this morning and said they were trialling a new system so she made me an appointment for August. This is one time I don’t want to miss seeing my neuro a I have had a relapse. I mentioned to her that a letter is on its way from GP but that I didn’t ask for steroids, what I really want is some physio. She agreed that physio would be more beneficial and is going to talk to the nurses and see what they can do. I wish I had phoned them instead yesterday as I’m sure they will agree with me. They know I manage my condition well and they are never keen to prescribe steroids unless the relapse is severe.