Hi. Has anyone shown m.s. symptoms even been told that it’s highly likely they have it. Then tests come back clear. Is it possible to show the symptoms before it shows up in tests ? Have had the symptoms for a few years. Lead to believe that it probably was m.s. after brain scan. They show lots of scaring on the white matter. Told these were white matter disease but large lesions caused by something else hence all the m.s. tests. Now told large lesions age related. I have now been told that the weakness in my arms and legs ( and the numbness and pain and fizzing ) or and the foot slapping are spinal . After years of going back and forth to spinal clinic 18 months ago consultant told me symptoms were neurological. Looks like My disc problems are to blame after all. I have osteoarthritic spine and degenerative disc disease. Confused and frustrated. And so the journey continues.
Hi, yeh my MS lesions were spinal only and it took 22 years to get my diagnosis.
I presented as typical PPMS very early on. Lost all mobility pretty quickly.
Boudsx
Hello
I have to say, it’s fairly common for people to have symptoms that look like MS, but for all the diagnostic tests to come back negative.
You should keep in mind that very many diagnoses do present similarly to MS but are not.
Boudicas experience is quite unusual, having spent 22 years basically in ‘limbo’, but it can take quite some time to get a definitive yes or no to MS. It sounds like your neurologist has decided that you don’t have MS. In such a situation, it can be quite disheartening. Not that anyone wants MS, but sometimes any diagnosis is better than none.
I do hope that given time (and you’ll best not hold your breath), you will get some better answers to your problems.
Sue
Hi, I have a strange situation, if anyone has any advice I would appreciate it. I was born in UK, however spent 37 years in Australia before returning back home to the UK 6 years ago. Whilst in Australia I was fully diagnosed as having MS by a Neurologist. That was after many years of symptoms, MRI scans as well as looking at any spinal issues. I chose to return to UK as the heat in Australia significantly made my symptoms worse. My problems arose when I arrived back in the UK as neurologists do not accept my Australian diagnosis and keep saying it is a neurological problem, even though my GP can’t get an answer to why my Australian diagnosis is not recognised. Until I can get UK neurologists to agree I cannot get any help. Many thanks for listening Emma
Hi Elmslife After years of going round in circles and still with out answers I feel your frustration. Would it be possible to get all your test results, scans and reports sent over from your Australian Neurologist or have them sent to your G.P ? Or even email your Ausi Neuro and explain the problem that you now face. They may be able to shed some light on the situation. All the best Wilma. Stay Safe
Hi, my elusive diagnosis was finally solved at a great hospital…The Walton Centre in Liverpool…a Centre of Excellence…the only one in UK for neurosciences.All clinics are closed just now.
Boudsx