I won’t go into the long, complicated and, frankly, quite boring history of my medical issues over the years (I’m sure some of you will already have been bored by them in other threads on here over the past few months!).
I will just cut to the chase…
Has anyone eventually been diagnosed with MS after a significant amount of time and tests coming back clear/negative for MS?
I have a collection of diagnoses, none of which fit in with my pattern of symptoms. My symptoms are typical MS symptoms and do tend to follow a relapsing/remitting pattern with certain things never going away.
I’ve had LP (clear), EP (normal), MRI of brain (‘non-specific’ multiple white matter lesions), MRI of cervical and thoracic spine (no visible lesions/inflammation). This has led to a “working diagnosis” of vestibular decompensation as my most debilitating and constant symptom is that of a feeling of imbalance/vertigo that never goes away and effects every second of my life.
However, I also had some tests at a balance clinic, which showed up some signs of definite CNS issues. My Neuro had not seen the report from these tests when I Iast saw him and received the “working diagnosis”. The guy at the balance clinic keeps talking about MS in the light of his finding and is hinting that my brain MRI should be looked at again, bearing in mind what he has found with his testing. He has re-sent his report with a note attached asking my Neuro to look specifically at the bits he is concerned about, but I’m not holding my breath that the Neuro will act upon it!
I thought the MS thing had been put to bed, but this guy keeps on about it and says my results were what he would expect to find in someone with MS or a brain tumour (he has ruled out the tumour theory because this would have shown up on the MRI).
I was just wondering if anyone had had normal results but gone on later to be dx? My head is just all over the place at the moment.
Sorry for rambling…once I started I couldn’t stop!!!