Chronic Constipation and Peristeen

Everyday living
1

Hi,

I don’t comment on here very often, however gain huge support from you all by knowing I’m not on my own! and answers are never very far away.

As the title suggests this is a symptom of my MS and many people find the subject quiet taboo. Because of this, I feel the need, even more to share this with you all. After all half of PaMS will suffer from constipation at some time during the journey with MS. Not to mention the huge impact it has on many of my other MS Symptoms, such as bladder, fatigue, and mobility.

I suffered for many years in silence and found it very difficult to talk about.

I feel so strongly now having come what I feel through the other side… that all bowel management options are never given to us as patients to make that informed choice to enable me to decided what works best and fits with my life style.

I finally discovered the option that worked for me, as I now use an anal irrigation system called Peristeen that is just water and it really did change my life beyond recognition… I have seen a website called my-bowel, that I found really helpful, and so keen to share it with you too.

I feel Chronic constipation is something I have to live with and it’s management has very much been neglected. I know what suits one person may not suit another but am so elated that now at least some information options are getting out there and is not just another drug to add to a list of many!

http://my-bowel.co.uk

There finally posted!!!

Hugs

Kay x

2

HI Kay

pleased to see your post. I did post about this a week or so a go. I got some interesting helpful feedback. I have a Peristeen nurse coming to my home next week, I am quiet concerned as it’s not something i would have considered, but the bowel issues got to much. Like you say, at least it is not a drug. I always thought when i got bowel issues, i would be on the plane to Switzerland, to me, it is the worse symptom, like going back to being a baby. Fortunately, i’ve got a lot to live for.

Weird, because since i made the decision i have had some improvement, but as we know, this disease is a master of trickery.

3

I’ve had problems with constipation for years, all the medications I take for MS seem to contribute to the problem. I’ve read that Peristeen can help, does anyone use persteen if so do you find it helps?

4

The Peristeen system has massively improved my life . I have more “Urgency” issues than constipation but it helps me with both. I can discreetly manage myself and can go out (pandemic not withstanding) with very high levels of confidence that I will not have any difficult / scary / embarrassing bowel issues.

mick

5

Many thanks for your feedback Mick, most people give Seem to agree with you.