Hi everyone,
I have a question, Dignosed with RRMS in January. I have been experiencing left side chest pain for roughly 3 months and my heart rate quickly rises everytime i get up and im just walking at normal pace, sometimes can be 135bpm.
I have had a chest Xray and also a chest CT scan with contrast 2 weeks later, i was told all normal findings apart from dependent denstities in bilateral lower lobes.
I just wanted to know if anyone else has or is experiencing these type of symptoms as personally i don’t think mine are linked to the MS. I am a little confused and obviously want to get to the bottom of it. I will make another trip to GP.
I haven’t started any treatment yet, had my neurologist appointment last week, he is sending out treatment options and its my decision on which one i want to go on, he didnt really give too much help with the decision making. Secondly, Did anyone else find that with their neurologist ?
Appreciate any help.
Hi Kirstylouise40
Another trip (or trips) to the GP for the chest pain/heart rate issue is the right way to go. Have you had an echocardiogram (ECG)? If not, ask the GP if one can be arranged to check the functioning of your heart. I had one due to a slightly enlarged heart (all came back normal for me).
Hi theresa
Yes i have had an ECG and came back normal too, i will book another appointment this week.
I think these info cards are ‘best in class’ by a mile when it comes to treatment options.
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thank you, i have seen these. How are you finding your treatment choice ?
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I’m Thinking that with the treatment options there will be a fair bit of info on the pros and cons of each .
In a way it might be slightly difficult to choose as people react in slightly different ways and to various degrees . Some definitely carry potentially greater side effects but do keep in mind that you will be monitored particularly in the first months and, if necessary/ if one really doesn’t suit you then you can always change it.
Unfortunately they all bring some side effects. I’ve been on Avonex for around 18 years and still get a dull headache, feel weary for 1-2 days after injection.
( injecting yourself might sound scary but I got used to it)
I was on Avonex for 10 yards and have now been on Tysabri for 15 or so. Unfortunately my MS proved too much for Avonex in the end. For me, the key is to get on the most effective thing on the menu. If that stops working, upgrade fast (that the bit I got wrong - I left it too long).
I had episodes of elevated heart rate, many months later I had a 24 hr ECG that’s when the picked up episodes of supra ventricular tachycardia. The cardiologist ordered a 7 day ECG and I was put on a beta blocker.
I’m still waiting to see a cardiologist, but things have settled down . Only time I’m now tachycardic is when I’m allergic to something , I now have a long list of foods and medications I can no longer tolerate.
I hope you get to the bottom of what’s going on.
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thankyou for your message. I see, have things settled down since being put on the beta blockers and are you still taking them if you dont mind me asking?
also what medication was you allergic too ? I have been doing a food diary for a while.
they gave me a 24 hr ECG a couple of months ago but apparently was normal. I have booked another GP appointment for tuesday so will see what he says.
Hiya Kirstylouise40:
Yes I’m still taking the beta blocker, and will probably have to take for the rest of my life. I’m allergic to, douloxetine, amitriptyline, carbamazepine, pregablin, then there’s milk, peanuts, tomato’s, anything with to much sugar, my body’s response is sending me tachycardic this has only happened since MS. Before I was lactose intolerant until I had the first relapse in December 2023.
Do you suffer with reflux, as it can mimic the heart racing . I went to my doctors several times for this and was dismissed until they did a 24 hour ECG. But I’ve also noticed I have an elevated heart rate when having an MS relapse as well.
I hope they get to the bottom of what’s going on, I know it’s not nice experiencing these symptoms when you are just sitting, or Ive had it wake me up in the night with a heart rate of over 200 beats a minute that’s when they increased my bisoprolol. I hope you get some answers next week.x