Hi, this is a strange one…. I recently had a catheter fitted and have noticed that the legbags take on a distinct and unpleasant odour (I can only describe it as the smell of a bonfire). They are changed regularly, I do not have an infection, but with each new bag the smell builds up after a few hours. My GP has no answer, the urologist has been no help. I’ve been wondering if any of the medication I take (perhaps LDN?) could be causing this, some sort of chemical reaction between the urine and the plastic bag.
If anyone has experienced this please could you reply as I am at a loss, feel helpless and it is hugely affecting my being able to be with other people as it is not something I can hide. Thank you.
Hi, did you get any answers about bonfire smell from catheter leg bag. I have the same problem but no one has an answer. It’s really annoying . Thank you
Hi Suerose, I’m so sorry you’re having this same problem. I tried everything Urology suggested - Vitamin C, cranberry, D-Mannose, nothing helped. They just thought I was talking about smelly urine when in fact I was talking about the catheter and bag reacting to something I was taking. In desperation I decided to see what happened when I stopped the drugs I was taking. I stopped taking MIRABEGRON a week before a catheter change. Since that catheter change there has been NO smell!! It’s been a lifechanger, I can get on with my life without fear of offending anyone.
I don’t know if you take Mirabegron, but I do hope you find a solution somehow. Good luck x